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X-WR-CALDESC:Events for AHCF
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DTSTART;VALUE=DATE:20231225
DTEND;VALUE=DATE:20231226
DTSTAMP:20260406T174926
CREATED:20230510T024518Z
LAST-MODIFIED:20230510T024518Z
UID:2725-1703462400-1703548799@ahckids.org
SUMMARY:Happy Birthday Joey!
DESCRIPTION:December 25\, 2023 \nJoey Hawk turns 11 today\, join us in wishing him a happy birthday and give the gift of hope for an AHC free future by donating to AHCF.
URL:https://ahckids.org/event/happy-birthday-joey/
LOCATION:TX
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20231224
DTEND;VALUE=DATE:20231225
DTSTAMP:20260406T174926
CREATED:20230510T024554Z
LAST-MODIFIED:20230510T024554Z
UID:2727-1703376000-1703462399@ahckids.org
SUMMARY:Happy Birthday Daxton!
DESCRIPTION:December 24\, 2023 \nDaxton Douglas turns 3 today\, join us in wishing her a happy birthday and give the gift of hope for an AHC future by donating to AHCF.
URL:https://ahckids.org/event/happy-birthday-daxton/
LOCATION:TX
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20231014T120000
DTEND;TZID=America/New_York:20231014T133000
DTSTAMP:20260406T174926
CREATED:20230927T210526Z
LAST-MODIFIED:20231003T200552Z
UID:6625-1697284800-1697290200@ahckids.org
SUMMARY:Webinar - Grief and Raising Special Needs Children
DESCRIPTION:Brad Thompson will lead what he calls a “guided dialogue” to explore the chronic nature of grief as it relates to families raising children with special healthcare needs. This will include the journey to acceptance of our situation and the challenges to that acceptance. It will also include the importance of finding real meaning in our lives as they are\, which is the key to living in hope.  We will also discuss the challenges to that acceptance and hope. \nWhen: Oct 14\, 2023 12:00 PM Eastern Time (US and Canada) \nRegister in advance for this meeting:\nhttps://zoom.us/meeting/register/tJUqfu-vrz4oG9x7pEFaivqH7Ypv2i6SOKtf \nAfter registering\, you will receive a confirmation email containing information about joining the meeting. \nBrad’s Information\nBrad Thompson\, M.A.\, NCC\, LPC-S \nBrad has been married to Karen for nearly 37 years. They have two adult children – Justin and Hali . Justin is married to Monica (Sisneros) Thompson and they have blessed us with two grandchildren – Ella Grace and Weston Day. Hali deals with the challenges of multiple special needs\, both physical and cognitive\, and is the inspiration for their work. Brad & Karen have been providing marriage retreats for couples who have children with special needs since 2009. \nBrad is the Director of The HALI Project – a non-profit organization that provides counseling and education services for families who have children with special needs and the people who serve them. That work includes working with families\, the education system\, and the medical system. In 2018\, he became the Director of Counseling Services for the Turn Center – a pediatric therapy clinic in Amarillo\, TX that serves over 1\,000 children with special needs and their families across the Texas Panhandle. \nBrad has been blessed with many opportunities to serve in the primary care and special needs communities. Since 2008\, he has worked with and in primary care practices to improve quality of care\, provider efficiency\, family health literacy\, and patient/family satisfaction through the Hali Project’s Parent Partner Program. \nHe served on the Medical Home Advisory Committee for the American Academy of Pediatrics from 2004-2010. From 2011-2015\, he has served on an advisory committee for the Patient Centered Primary Care Collaborative. In 2017\, he was asked to lead the Family Support & Empowerment Program for the Child Neurology Foundation. Brad has served as CNF’s lead trainer for their Caregiver Support project since 2018. \nWhile we would never have chosen for Hali the challenges that she faces every day\, we feel incredibly blessed to share the lessons we have learned over 33 years with her to people across the country.
URL:https://ahckids.org/event/webinar-grief-and-raising-special-needs-children/
LOCATION:TX
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/jpeg:https://ahckids.org/wp-content/uploads/2023/05/Webinar_Banner-2.jpg
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20230930
DTEND;VALUE=DATE:20231001
DTSTAMP:20260406T174926
CREATED:20230510T024934Z
LAST-MODIFIED:20230822T051220Z
UID:2734-1696032000-1696118399@ahckids.org
SUMMARY:Race to End AHC
DESCRIPTION:September 30\, 2023 \nAnnual virtual race to raise funds and awareness to end AHC.
URL:https://ahckids.org/event/race-to-end-ahc/
LOCATION:TX
ATTACH;FMTTYPE=image/jpeg:https://ahckids.org/wp-content/uploads/2023/05/Event-9.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20230622
DTEND;VALUE=DATE:20230626
DTSTAMP:20260406T174926
CREATED:20230510T024739Z
LAST-MODIFIED:20241029T143147Z
UID:2731-1687392000-1687737599@ahckids.org
SUMMARY:AHCF Family Meeting 2023
DESCRIPTION:June 22-25 \nEmbassy Suites \nGlendale Los Angeles\, California \nLearn More About Family Meetings
URL:https://ahckids.org/event/ahcf-family-meeting-2023/
LOCATION:TX
ATTACH;FMTTYPE=image/jpeg:https://ahckids.org/wp-content/uploads/2023/05/Event-8.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20230601
DTEND;VALUE=DATE:20230602
DTSTAMP:20260406T174926
CREATED:20230510T024623Z
LAST-MODIFIED:20230510T024623Z
UID:2729-1685577600-1685663999@ahckids.org
SUMMARY:Happy Birthday Sean!
DESCRIPTION:June 1\, 2023 \nSean Gerber turns 20 today\, join us in wishing her a happy birthday and give the gift of hope for an AHC future by donating to AHCF.
URL:https://ahckids.org/event/happy-birthday-sean/
LOCATION:TX
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20240229
DTEND;VALUE=DATE:20240301
DTSTAMP:20260406T174926
CREATED:20230426T200030Z
LAST-MODIFIED:20240115T011750Z
UID:569-1709164800-1709251199@ahckids.org
SUMMARY:Rare Disease Day
DESCRIPTION:Join people around the world raising awareness for AHC and thousands of rare diseases. Share our Facebook and Instagram posts!
URL:https://ahckids.org/event/rare-disease-day/
LOCATION:square lorem\, Town Center Suite 1900\, Southfield\, AL\, 48075\, United States
ATTACH;FMTTYPE=image/jpeg:https://ahckids.org/wp-content/uploads/2023/04/Event-1.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20230510
DTEND;VALUE=DATE:20230511
DTSTAMP:20260406T174926
CREATED:20230510T024419Z
LAST-MODIFIED:20230510T024419Z
UID:2723-1683676800-1683763199@ahckids.org
SUMMARY:Happy Birthday Kiley!
DESCRIPTION:May 10\, 2023 \nKiley Andrasco turns 22 today\, join us in wishing her a happy birthday and give the gift of hope for an AHC free future by donating to AHCF.
URL:https://ahckids.org/event/happy-birthday-kiley/
LOCATION:TX
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20230214
DTEND;VALUE=DATE:20230215
DTSTAMP:20260406T174926
CREATED:20230510T024321Z
LAST-MODIFIED:20230510T024321Z
UID:2720-1676332800-1676419199@ahckids.org
SUMMARY:Valentine's Card Exchange
DESCRIPTION:February 1-14 \nAHCF parent\, Heather Gates\, and daughter Jocelyn\, host an annual Valentine’s Card exchange for people with AHC of all ages! \nEmail heather@ahckids.org to join!
URL:https://ahckids.org/event/valentines-card-exchange/
LOCATION:TX
ATTACH;FMTTYPE=image/jpeg:https://ahckids.org/wp-content/uploads/2023/05/Event-3.jpg
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BEGIN:VEVENT
DTSTART;TZID=UTC:20230203T170000
DTEND;TZID=UTC:20230203T170000
DTSTAMP:20260406T174926
CREATED:20230508T170545Z
LAST-MODIFIED:20230726T223838Z
UID:1540-1675443600-1675443600@ahckids.org
SUMMARY:Warriors for Kathryn
DESCRIPTION:FRIDAY FEBRUARY 3\, 2023 \n5PM \nExpo Hall – 2691 N. Park Rd. Connersville\, IN \nHelp support a worthy cause through Warriors for Kathryn at Expo Hall in Connersville! Follow the event page on Facebook at https://fb.me/e/3F5hfAh9p for more information on Wine Bingo\, Texas Hold’em\, Dinner\, Basket Raffle\, Quilt Raffle\, and more!
URL:https://ahckids.org/event/warriors-for-kathryn/
LOCATION:TX
ATTACH;FMTTYPE=image/jpeg:https://ahckids.org/wp-content/uploads/2023/05/Event-2.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20230118
DTEND;VALUE=DATE:20230119
DTSTAMP:20260406T174926
CREATED:20230510T025130Z
LAST-MODIFIED:20230510T025130Z
UID:2737-1674000000-1674086399@ahckids.org
SUMMARY:International AHC DAY
DESCRIPTION:January 18\, 2023 \nJoin us as we spread awareness and raise funds to end AHC on the anniversary of the discovery of the gene that causes AHC: ATP1A3.
URL:https://ahckids.org/event/international-ahc-day/
LOCATION:TX
ATTACH;FMTTYPE=image/jpeg:https://ahckids.org/wp-content/uploads/2023/05/Event-10.jpg
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