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DTSTART;TZID=America/New_York:20260520T190000
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UID:9481-1779303600-1779310800@ahckids.org
SUMMARY:What’s so Special about Special Needs Planning!
DESCRIPTION:Mary Anne Ehlert of Protected Tomorrows presents:  What’s So Special about Special Needs Planning.\nWebinar event:   May 20th at 6:00 p.m. Central Time \nRegistration link:\nhttps://us02web.zoom.us/webinar/register/WN_r_SXL-kTQ6W02_onrknsEQ  \nJoin us for an enlightening presentation that includes: \nAn overview of the Protected Tomorrows Mission and an understanding of how we work with families to Construct a Framework for Future Care\, Coordinate Family Communication and Transitions\, as well as Navigate Legal and Financial Requirements.  We will review the different steps needed for financial security\, particularly  for special needs families; review how the right resources make a difference in helping families coordinate care\, and how Protected Tomorrows can help the AHF Family. \nMary Anne Ehlert is a financial professional and founder of Protected Tomorrows\, a business driven to help\nfamilies plan a safe and fulfilling life for their loved ones with special needs. She is highly regarded as a\nspecialist in working with the growing number of families of individuals with disabilities and the elderly. Her\nexpertise is driven by her relationship with her sister\, an individual with disabilities. She communicates her\nknowledge at family and financial conferences; she also delivers important information to television and radio\naudiences\, appearing on such shows as WGN-AM’s “The Steve Cochran Show” and Chicago’s ABC7 News.\nShe has been featured in such publications and Internet sites as the Chicago Sun-Times\, Bloomberg.com\,\nInvestment News and Financial Advisor.\nEhlert has been a member of the Board of Directors of several organizations providing services to children and\nadults with special needs including Vice-Chair\, National Disability Institute in Washington DC\, and Illinois\nSpecial Olympics. She is currently a board member of the Special Olympics Illinois Foundation\, Cornelia de\nLange Syndrome (CDLS) Foundation\, Integrative Touch\, Protected Tomorrows Charities\, and the Advisory\nBoard of Tails for Life.\nShe speaks on financial planning and on the role of care giving\, and completed her book\, entitled “The Gift I\nWas Given: The Journey of a Caregiver Through the Stages of What Now?\, Why Me?\, and Ah Ha!\nEhlert’s sister\, Marcia\, was born with cerebral palsy and inspired Mary Anne’s dedication to helping others\nprotect their family member’s future. She later became a long-term caregiver for both of her aging parents.\nWhile coordinating the care\, along with her other 4 adult siblings\, she developed a unique (and entertaining)\nperspective on how family members relate to each other in this care giving mode.
URL:https://ahckids.org/event/whats-so-special-about-special-needs-planning/
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DTSTART;TZID=America/New_York:20260924T080000
DTEND;TZID=America/New_York:20260926T170000
DTSTAMP:20260525T123306
CREATED:20260115T153305Z
LAST-MODIFIED:20260202T082055Z
UID:8849-1790236800-1790442000@ahckids.org
SUMMARY:14th ATP1A3 Symposium
DESCRIPTION:The French AHC Family Association (AFHA) is honoured and delighted to announce that the 14th ATP1A3 in disease Symposium will take place at the at the Pitié-Salpêtrière Hospital in PARIS\, France from Thursday 24th September to Saturday 26th September 2026. \nThursday\, September 24th\, 2026 will be for meeting associations and families concerned by ATP1A3 diseases. \n\nThe scientific meeting will be on Friday 25th and Saturday 26th September.\nDownload the Welcome letter by the  2026 Organising Committee
URL:https://ahckids.org/event/14th-atp1a3-symposium/
ATTACH;FMTTYPE=image/jpeg:https://ahckids.org/wp-content/uploads/2025/12/14th_symposium_on_atp1a3_in_disease_paris_2026_logo-e1764775968213.jpg
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DTSTART;TZID=America/New_York:20270623T080000
DTEND;TZID=America/New_York:20270626T170000
DTSTAMP:20260525T123306
CREATED:20260107T155210Z
LAST-MODIFIED:20260512T143028Z
UID:8893-1813737600-1814029200@ahckids.org
SUMMARY:AHCF Family Meeting 2027 -  Bigger in Texas. Stronger Together.
DESCRIPTION:Thirty years ago\, The AHC Foundation brought families together because they needed more than support — they needed answers. That gathering became the Family Meeting\, and over three decades it has grown into a full-fledged conference grounded in research\, medicine\, and collaboration. \nAfter our most impactful meeting yet in Cincinnati in 2025\, we’re heading to Houston in June 2027 to continue what the AHC Foundation does best: connecting families\, clinicians\, and researchers to move care forward. \n📍 Houston\, Texas | June 2027\nBig Hearts. Strong Bonds. Together in Texas.
URL:https://ahckids.org/event/ahcf-family-meeting-2027-bigger-in-texas-stronger-together/
ATTACH;FMTTYPE=image/jpeg:https://ahckids.org/wp-content/uploads/2026/01/Save-the-Date-Houston-e1778596213610.jpg
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