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X-WR-CALDESC:Events for AHCF
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DTSTART;TZID=America/New_York:20260202T120000
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DTSTAMP:20260420T171458
CREATED:20260202T151328Z
LAST-MODIFIED:20260202T153054Z
UID:9060-1770033600-1771804800@ahckids.org
SUMMARY:AHCF Apparel Pop-Up Store is Open!
DESCRIPTION:You asked—and we’re excited to say it’s back 💙 \nOur apparel store is officially OPEN as a limited-time pop-up\, launched to honor the meaningful days between International AHC Day and Rare Disease Day. \nThis collection is more than apparel. It’s about visibility\, connection\, and proudly supporting the AHC community. Many of these designs are fan favorites\, brought back by popular demand\, and available now through February 23. \nWhether you’re wearing your support\, sparking conversations\, or standing with rare families everywhere—every purchase helps make an impact. \n🛍️ Shop the pop-up before it closes on February 23 \n💙 Wear your support for rare \n✨ Celebrate awareness\, together \n\n\n\nShop here:\n\n\n\nhttps://ahcf2026.itemorder.com/shop/home/
URL:https://ahckids.org/event/ahcf-apparel-pop-up-store-is-open/
CATEGORIES:Upcoming Events
ATTACH;FMTTYPE=image/jpeg:https://ahckids.org/wp-content/uploads/2026/02/Monday_Apparel-Store-Launch-Graphic-11-e1770019838892.jpg
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DTSTART;TZID=America/New_York:20260212T130000
DTEND;TZID=America/New_York:20260212T140000
DTSTAMP:20260420T171458
CREATED:20260203T195605Z
LAST-MODIFIED:20260203T195605Z
UID:9110-1770901200-1770904800@ahckids.org
SUMMARY:Parent University - Estate Planning
DESCRIPTION:All about estate planning 📄\nJoin Protected Tomorrows’ Parent University Class 2 for an informational session breaking down the different components of estate planning. In this class\, we will discuss:\n➡️ What are the components\n➡️ How to find the right attorney\n➡️ What needs to be updated and when\n📅 February 12\, 2026\n⏰ 12 – 1pm CDT\n💻 Zoom Webinar\n🔗Register TODAY: https://protectedtomorrows.com/…/2026-parent…/\nEven if you cannot attend the webinar\, register to receive an email with a link to watch the recording in the following week.
URL:https://ahckids.org/event/parent-university-estate-planning/
CATEGORIES:Upcoming Events,Webinar
ATTACH;FMTTYPE=image/jpeg:https://ahckids.org/wp-content/uploads/2026/02/Parent-University-e1770137631214.jpg
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DTSTART;TZID=America/New_York:20260225T180000
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CREATED:20260211T161658Z
LAST-MODIFIED:20260218T185827Z
UID:9224-1772042400-1772046000@ahckids.org
SUMMARY:🫀 Heart 2 Heart Webinar: Cardiac Care & AHC
DESCRIPTION:🫀Join AHCF for a heart-to-heart conversation with Dr. Andrew Landstrom\, focused on the unique cardiac concerns faced by individuals living with Alternating Hemiplegia of Childhood. \n\n\n\nWednesday\, February 25 @ 6:00 PM EST \nPlease click the link below to register for the event:\nhttps://tinyurl.com/5863hv3z\nRegistration is required. All registrants will receive a confirmation email with the Zoom link.\n\nThis accessible webinar is designed for patients\, families\, and caregivers seeking clear\, practical guidance and trusted insight. \nDuring this webinar\, participants will:\nLearn about common cardiac concerns associated with AHC\nGain insight into cardiac evaluations and ongoing monitoring\nBetter understand what symptoms to watch for and what questions to ask\nParticipate in a live Q&A with Dr. Landstrom \n\n\n\n\nDr. Andrew Landstrom — a member of the 𝗔𝗛𝗖𝗙 𝗠𝗲𝗱𝗶𝗰𝗮𝗹 𝗔𝗱𝘃𝗶𝘀𝗼𝗿𝘆 𝗕𝗼𝗮𝗿𝗱— has been appointed 𝗜𝗻𝗮𝘂𝗴𝘂𝗿𝗮𝗹 𝗗𝗶𝗿𝗲𝗰𝘁𝗼𝗿 𝗼𝗳 𝗧𝗿𝗮𝗻𝘀𝗹𝗮𝘁𝗶𝗼𝗻𝗮𝗹 𝗥𝗲𝘀𝗲𝗮𝗿𝗰𝗵 at 𝗖𝗵𝗶𝗹𝗱𝗿𝗲𝗻’𝘀 𝗛𝗼𝘀𝗽𝗶𝘁𝗮𝗹 𝗼𝗳 𝗣𝗵𝗶𝗹𝗮𝗱𝗲𝗹𝗽𝗵𝗶𝗮 (𝗖𝗛𝗢𝗣)’𝘀 𝗖𝗮𝗿𝗱𝗶𝗼𝘃𝗮𝘀𝗰𝘂𝗹𝗮𝗿 𝗜𝗻𝘀𝘁𝗶𝘁𝘂𝘁𝗲\, where he is launching a new Center for Heritable Arrhythmias. \nThis new role reflects his continued commitment to advancing care for individuals with genetic arrhythmia syndromes\, including those impacted by 𝗔𝗛𝗖 𝗮𝗻𝗱 𝗔𝗧𝗣𝟭𝗔𝟯 𝘃𝗮𝗿𝗶𝗮𝗻𝘁𝘀.
URL:https://ahckids.org/event/%f0%9f%ab%80-heart-2-heart-webinar-cardiac-care-ahc/
ATTACH;FMTTYPE=image/jpeg:https://ahckids.org/wp-content/uploads/2026/02/Dr.-Andrew-Landstrom.jpg
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