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X-WR-CALDESC:Events for AHCF
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DTSTART;TZID=America/New_York:20260501T080000
DTEND;TZID=America/New_York:20260501T170000
DTSTAMP:20260604T170250
CREATED:20260304T162143Z
LAST-MODIFIED:20260304T162214Z
UID:9334-1777622400-1777654800@ahckids.org
SUMMARY:RARE Advocate Development (RAD) Brain Workshop
DESCRIPTION:We’re excited to share that the AHC Foundation has been invited to attend the RAREAdvocate Development (RAD) Brain Workshop this May in Boston! \n\n\n\nThis three-day intensive\, hosted by Global Genes\, the Rare Epilepsy Network (REN)\, and Mahzi Therapeutics\, brings together rare disease advocates who are actively accelerating research in their neurological conditions.\n\n\n\nFrom drug development and clinical trial design to regulatory strategy\, manufacturing\, and even drug repurposing\, this workshop is focused on building the knowledge and confidence needed to move therapies forward.\n\n\n\nWe’re honored to represent our community at this collaborative meeting at Alexion\, AstraZeneca Rare Disease\, and look forward to sharing key insights when we return.\n\n\n\nLearn more about the RAD Brain Workshop: https://globalgenes.org/rare-advocate-development-rad…/
URL:https://ahckids.org/event/rare-advocate-development-rad-brain-workshop/
CATEGORIES:Upcoming Events
ATTACH;FMTTYPE=image/jpeg:https://ahckids.org/wp-content/uploads/2026/03/foundation-focus-e1772532881254.jpg
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260513T130000
DTEND;TZID=America/New_York:20260513T140000
DTSTAMP:20260604T170250
CREATED:20260513T050007Z
LAST-MODIFIED:20260505T223639Z
UID:9380-1778677200-1778680800@ahckids.org
SUMMARY:AHCF Family Circle - You're Invited - 5/13/26
DESCRIPTION:Join us for our next AHCF Family Circle on Wednesday\, May 13th at 10am PST/ 12pm CST/ 1pm EST. \nThis is a support group for parents of individuals with AHC. Share your challenges and joys in this informal setting. Connect with others on this journey! \nIf you have questions\, please email Heather Gates at Heather@ahckids.org. We look forward to seeing you. \nJoin Zoom Meeting: https://us02web.zoom.us/j/85227963024 \nNeed a Reminder? \nSign up for text message reminders for AHC Family Circle at: https://www.remind.com/join/familyahc
URL:https://ahckids.org/event/ahcf-family-circle-youre-invited-5-13-26/
ATTACH;FMTTYPE=image/png:https://ahckids.org/wp-content/uploads/2025/10/AHC-Family-Circle-6-e1778021495433.png
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260513T130000
DTEND;TZID=America/New_York:20260513T143000
DTSTAMP:20260604T170250
CREATED:20260505T224530Z
LAST-MODIFIED:20260506T195851Z
UID:9477-1778677200-1778682600@ahckids.org
SUMMARY:AHCF Family Circle – You’re Invited – 5/13/26
DESCRIPTION:Join us for our next AHCF Family Circle on Wednesday\, May 13th at 10am PST/ 12pm CST/ 1pm EST. \nThis is a support group for parents of individuals with AHC. Share your challenges and joys in this informal setting. Connect with others on this journey! \nIf you have questions\, please email Heather Gates at Heather@ahckids.org. We look forward to seeing you. \nJoin Zoom Meeting: https://us02web.zoom.us/j/85227963024 \nNeed a Reminder? \nSign up for text message reminders for AHC Family Circle at: https://www.remind.com/join/familyahc
URL:https://ahckids.org/event/ahcf-family-circle-youre-invited-5-13-26-2/
CATEGORIES:Upcoming Events
ATTACH;FMTTYPE=image/png:https://ahckids.org/wp-content/uploads/2025/10/AHC-Family-Circle-6-e1778021495433.png
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260514T130000
DTEND;TZID=America/New_York:20260514T140000
DTSTAMP:20260604T170250
CREATED:20260506T195527Z
LAST-MODIFIED:20260506T195527Z
UID:9489-1778763600-1778767200@ahckids.org
SUMMARY:2026 Parent University - Vacations and Respite Ideas for the Whole Family
DESCRIPTION:In this exciting session about respite\, we will cover: \nHave you ever thought it is just not possible to have a vacation? Or maybe just some respite?\nHow does that fit into your life?\nWhere can you find resources that match the needs of your family?\nClick Here To Register
URL:https://ahckids.org/event/2026-parent-university-vacations-and-respite-ideas-for-the-whole-family/
CATEGORIES:Upcoming Events,Webinar
ATTACH;FMTTYPE=image/jpeg:https://ahckids.org/wp-content/uploads/2026/02/Parent-University-e1770137631214.jpg
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260520T190000
DTEND;TZID=America/New_York:20260520T210000
DTSTAMP:20260604T170250
CREATED:20260506T140811Z
LAST-MODIFIED:20260506T140811Z
UID:9481-1779303600-1779310800@ahckids.org
SUMMARY:What’s so Special about Special Needs Planning!
DESCRIPTION:Mary Anne Ehlert of Protected Tomorrows presents:  What’s So Special about Special Needs Planning.\nWebinar event:   May 20th at 6:00 p.m. Central Time \nRegistration link:\nhttps://us02web.zoom.us/webinar/register/WN_r_SXL-kTQ6W02_onrknsEQ  \nJoin us for an enlightening presentation that includes: \nAn overview of the Protected Tomorrows Mission and an understanding of how we work with families to Construct a Framework for Future Care\, Coordinate Family Communication and Transitions\, as well as Navigate Legal and Financial Requirements.  We will review the different steps needed for financial security\, particularly  for special needs families; review how the right resources make a difference in helping families coordinate care\, and how Protected Tomorrows can help the AHF Family. \nMary Anne Ehlert is a financial professional and founder of Protected Tomorrows\, a business driven to help\nfamilies plan a safe and fulfilling life for their loved ones with special needs. She is highly regarded as a\nspecialist in working with the growing number of families of individuals with disabilities and the elderly. Her\nexpertise is driven by her relationship with her sister\, an individual with disabilities. She communicates her\nknowledge at family and financial conferences; she also delivers important information to television and radio\naudiences\, appearing on such shows as WGN-AM’s “The Steve Cochran Show” and Chicago’s ABC7 News.\nShe has been featured in such publications and Internet sites as the Chicago Sun-Times\, Bloomberg.com\,\nInvestment News and Financial Advisor.\nEhlert has been a member of the Board of Directors of several organizations providing services to children and\nadults with special needs including Vice-Chair\, National Disability Institute in Washington DC\, and Illinois\nSpecial Olympics. She is currently a board member of the Special Olympics Illinois Foundation\, Cornelia de\nLange Syndrome (CDLS) Foundation\, Integrative Touch\, Protected Tomorrows Charities\, and the Advisory\nBoard of Tails for Life.\nShe speaks on financial planning and on the role of care giving\, and completed her book\, entitled “The Gift I\nWas Given: The Journey of a Caregiver Through the Stages of What Now?\, Why Me?\, and Ah Ha!\nEhlert’s sister\, Marcia\, was born with cerebral palsy and inspired Mary Anne’s dedication to helping others\nprotect their family member’s future. She later became a long-term caregiver for both of her aging parents.\nWhile coordinating the care\, along with her other 4 adult siblings\, she developed a unique (and entertaining)\nperspective on how family members relate to each other in this care giving mode.
URL:https://ahckids.org/event/whats-so-special-about-special-needs-planning/
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