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AHCF 30 Years Strong

Join us for the 15th
AHCF Family Meeting!

A One in a Million Life! ACHF Family Meeting 2025

The meeting will take place in the Cincinnati, OH area Thursday June 19th through Saturday June 21st. Join us as we get energized by the wonderful support of our AHCF community!

Thursday June 19th

Informal Office Hours – an afternoon with medical and professional experts in AHC, Neurology, Epilepsy, Dystonia, Genetics, & Behavior. No appointment needed!

Meet & Greet – All are invited to join us for a pizza gathering at the hotel. Mingle with other families, doctors, and board members to start the conference off with a warm welcome.

Friday & Saturday June 20th– 21st

The agenda will include two full days of presentations, expert panels, and Q & A sessions, plus time to socialize with families, physicians and foundation board members.

Saturday June 21st

  • AHCF Luncheon – Families are invited to join for a foundation sponsored luncheon. Help us celebrate 30 years of serving the AHC community!
  • Ice Cream Social & Dance – Join us for an evening of fun with friends and family!

 Family Meeting Registration

Early Bird registration is available until May 1st, after which registration fees will increase.

Fees include a Meet & Greet pizza gathering on Thursday, an AHCF 30th anniversary luncheon on Saturday, snacks and activities in the Hangout Room, and an Ice Cream Social and Dance on Saturday evening.

Register all attendees below:

https://ahckids.app.neoncrm.com/eventReg.jsp?event=74&

Streaming Option:

This will be offered for a fee of $150. Presentations will be available to view after the meeting for a short period of time. More information to come.

Hotel Registration

Park with river and buildings in background

The AHCF Family Meeting will be held at the Embassy Suites by Hilton Cincinnati RiverCenter, 10 E Rivercenter Blvd, Covington, KY 41011.

A block of rooms is available for our guests at an event discount.

Group Name: Alternating Hemiplegia of Childhood Foundation Conference

Group Code: 92U

Central Reservations: 866-344-7548

Reservations Website: https://www.hilton.com/en/attend-my-event/alternatinghemiplegiaofchildhoodfoundationconf-92u/

RESERVATION DEADLINE is 5/20/2025 at 11:59:59PM.

Rooms include a discounted parking fee of $6 per day in the attached city owned parking garage.

More Parking Information: https://acrobat.adobe.com/id/urn:aaid:sc:VA6C2:76b16c8e-fcd0-42cf-860e-175240b60e8b

All rooms are two-room suites with a refrigerator and microwave. Some adjoining rooms are available.

A limited number of accessible rooms are available.

Hotel and Area Attractions Information

Hotel with river in foreground

More details about the Embassy Suites Cincinnati RiverCenter and area attractions can be found here:

https://www.hilton.com/en/hotels/cvgcves-embassy-suites-cincinnati-rivercenter/

Visit Northern Kentucky | Things To Do, Restaurants and Events

Reasons to Attend the Family Meeting

  • Gain valuable insights into the latest advancements in research.
  • Engage with expert doctors, researchers, and other professionals in a relaxed atmosphere.
  • Learn to advocate in the medical and educational community.
  • Learn coping strategies for the challenges of living with AHC.
  • Connect and share experiences with other individuals and their families.
  • Learn about AHCF’s mission and how you can contribute.
  • Build lifelong friendships as you join your AHC family!

Meeting Agenda and Speakers

Join us as we gather with medical professionals, researchers, advocates, and families. Learn about the latest scientific research, medical care, best practices for advocating, planning for the future, and therapeutic interventions in daily living.

Check back often for updates!

Caregiving

AHCF will provide volunteers and activities in the Hangout Room. A parent or designated caregiver is welcome to accompany the individual with AHC/siblings, if they choose.

Family Grant for Family Meeting

AHCF offers a Family Grant, available on a limited basis, of up to $500 per family, and may be used for attending the Family Meeting. If you are in need, please get in touch with Heather (heather@ahckids.org) for more information.

If you find the requested registration fee a hardship and may prevent you from attending, please get in touch with Heather (heather@ahckids.org).

We are happy to provide letters of need or letters for Visa applications to attend the meeting. Please email Sharon (sharon@ahckids.org) as early as possible to accommodate such requests.