There are 6,000+ rare diseases.
AHC was first noted in the 1970s; described as an unusual disorder in eight children who demonstrated intermittent episodes of weakness, affecting first one side of the body, then the other, with onset in early childhood. AHC often mimics other diseases and continues to be difficult to diagnose because of its rarity and highly variable symptoms. To this day we have no effective treatment or cure for AHC.
More research is necessary to improve early diagnosis, understand the full range of symptoms, and develop more effective treatments. The urgency in this research comes from the havoc each episode wrecks on our children causing life threatening and sometimes permanent damage.
Join us in the Race to End AHC to fund research and make hope a reality by ending AHC.
Get your race bib today at https://ahckids.app.neoncrm.com/…/ahckids/giftstore.jsp#endAHC#ahcf#racetoendahc