February 28, 2013 is Rare Disease day! Help AHC be heard in the Rare Disease Community! Sharing experiences helps people understand what it is like to live with a rare disease. Go here for ideas and to share your story http://rarediseaseday.us/
NORD will also be celebrating it’s 30th year anniversary of advocacy for rare diseases all year long; Stay informed, Get involved!! http://rarediseases.org/nord-30th-anniversary