AHCF is pleased to present our 12th “Family Meeting”! You are invited to join us on Saturday June 26th and Sunday June 27th as we come together virtually to learn about the latest Research, Living with AHC, Behavior issues, Special needs Financial planning, “Ask the Doctor” and “Experienced Parents” panels!
Please invite your local Neurologist and other medical and educational personnel if they would like to learn about AHC. Everyone who attends must register!
The following video presentation links are provided for your review.
Perhaps they will trigger questions for us to address at the meeting.
Attending these presentations is always the best way to participate, but we understand that our schedule doesn’t work for everyone. Presentations will be recorded and published to our youtube channel as they are allowed by the presenter. From there you can revisit a presentation or hear it for the first time. Many of our past presentations are published, and continue to be a useful resource.
Much time is needed to plan an in-person meeting, including reserving hotels and blocks of rooms, etc. At the time of planning the hotels and air travel industries were not favorable to in-person conferences. Since the pandemic is not “over”, the AHCF does not want to promote an important event that would place families at risk of health complications. We know in-person meetings are best for so many reasons. We hope to be in-person at our next family meeting!
YES! We are gathering questions for the Behavior sessions, the Parent panel and the Physicians panel. Although we will answer questions that are presented at the meeting we would like to be able to send questions for these sessions to the speakers beforehand. Send all of your questions to Kelly Andrasco firstname.lastname@example.org. the deadline to submit questions is June 18th.
Unfortunately, we don’t have the capability to translate while live streaming but we are going to try adding Spanish subtitles to each presentation later, when it is posted on our website/you tube site.
YES! Please invite any professional that is involved with your child’s care that you feel would be interested. Please remember that everyone Must Registerhttps://zoom.us/meeting/register/tJIkcOusqTIoHNxYWjZ57IXyoOwL3eTZUlvX