A virtual event to spread awareness for AHC and raise funds for research, education, and community support to fulfill the foundation’s mission: END AHC.
Joining the Race to End AHC is easy and free! Pick any activity of your choice: run, bike, walk, roll, swim. Set a goal and complete your activity on October 3rd along with others around the world in support of the AHC community!
In the meantime, help us spread awareness by educating others about AHC and donate to the AHC Foundation to help END AHC!
Last year’s Race to End AHC raised over $125,000 towards ending AHC. Cutting edge research has advanced greatly in the past year and the stakes are even higher. WE NEED YOU! We need passionate and generous people to step up and fundraise alongside us and to give generously in order to END AHC!
AHC Families from all over the world are leading the fundraising charge and may be hosting a local event near you! Read their stories and join a fundraising team below. Contact Kate (firstname.lastname@example.org) to get your event included in our list!
From the moment a person is given a diagnosis of AHC the race is on. Every step taken, every drop of sweat shed fuels cutting edge research, life changing awareness, and relentless advocacy to end the nightmare that is AHC.
AHC is a rare neurological disorder that causes bouts of paralysis that can affect any or all parts of the body and last from minutes to weeks. These “episodes” can be triggered by everyday things we all enjoy – exercise, different foods, water for bathing or swimming and excitement. It can also cause episodes of dystonia which causes the muscles to contract involuntarily, causing repetitive twisting, spasms and painful cramping and sometimes seizures. There is currently no treatment or cure for AHC.
The AHC Foundation’s mission is to find the cause(s) of AHC, develop effective treatments and ultimately find a cure, while providing support to the families and children with AHC by funding research to accomplish these goals.
Read more about how the Foundation supports these initiatives here.
We need you to join the Race to End AHC!
Visit the store below and gear up for Race Day with t-shirts, hoodies, bandanas, magnets, pins, and wristbands!
Joining a team in support of a warrior with AHC? Get a personalized shirt for race day! See store for details
The deadline has passed for race day delivery. Any orders received will be shipped after the event.
Click the images above to learn about a few of the brave kids who need your help. These stories are both unique and similar at the same time. They exhibit both the struggle and the triumph of our community over AHC.