Here You’ll Find
AHCF strives to provide the AHC community with the latest in AHC research developments, patient education, resources for families, community news, and fundraising opportunities and guidance.
Community Updates
AHCF and community events, including monthly virtual support groups, biennial Family Meetings, birthdays & stories, and holiday happenings, live here!
Fundraising Updates
Check out what others are doing to help end AHC and how you can help too!
Caring for AHC
Learn about managing symptoms, planning for the future, and advocating for our children with AHC
Professional Education
Educating professionals about this ultra-rare disease is critical to patient care and positive outcomes.
Research News
Multiple research projects targeted at treating or curing AHC are making rapid progress. Stay updated here.
AHCF Mission Video
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Press & Media Inquiries
Our media tool kit is your one-stop shop for all your AHCF content creation needs! Use these tools to generate your content with the credibility of the AHCF brand.
How to Help Us
Learn about different ways to help end AHC. Volunteer, spread awareness on social media, start a fundraiser, or donate now!