Overview
The focus of our Research Strategy is to advance translational and clinical research, develop a support structure for clinical studies, secure and promote AHC data and biomaterials, and facilitate collaboration to benefit the AHC community in a purposeful and timely manner. We strive to find the cause(s) of AHC, develop effective treatments, and find a cure, while providing support to families and individuals with AHC. Our initiative includes four focus areas:
Care
Advance translational and clinical research to provide insights on AHC triggers and identify methods for reducing stress induced episodes.
Collaborate
Support clinicians and researchers across a diverse landscape to expand awareness and research for the AHC community.
Communicate
Support the development of necessary research tools, techniques, model systems, and data collection platforms to stimulate and accelerate AHC research.
Cure
Optimize scientific advances that have the potential to truly transform the lives of those affected by AHC, with prevention and disease modification as critical goals.
Clinical Trials
AHCF promotes and supports a culture of data sharing by serving as a trusted liaison between potential research participants and investigators. We strive for greater transparency in the research we fund so it will be shared with the AHC community in a timely and responsible manner.