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Leading Patient Advocacy for AHC

In addition to patient and family support, we promote proper diagnosis, educate health care professionals and the public, encourage the worldwide exchange of information, and advance the development of an international database of all AHC patients.

100 % Volunteer
World’s largest foundation devoted to Alternating Hemiplegia of Childhood (AHC) entirely run by volunteers.
30 Years
Highly experienced parents and physicians have accumulated experience living with AHC for more than 30 years
4 Categories
Wealth of resources to help with living with AHC, caring for AHC, researching AHC, and fundraising to END AHC.
$ 3 Million+
Funding global research at prestigious institutions, including The University of Utah, Vanderbilt, Northwestern University, the Broad Institute, and Harvard University.
100 % Worldwide
International advocacy includes active leadership with AHC International Alliance, ATP1A3 Symposiums and passionately connecting with Families around the globe.

Board of Directors

The AHCF Board of Directors is comprised of volunteers from a wide range of professional experience who are passionate about improving the lives of AHC patients. The application of their professional skills and strong commitment to the mission of the foundation has earned research community support and driven efficient financial management.

Medical Advisory Board

The AHCF Medical Advisory board is comprised of recognized authorities of the AHC disorder from leading academic facilities, clinical hospitals, and research institutions; all have devoted their time and medical expertise to improving the lives of people afflicted with AHC. Their role is to provide strategic advice and counsel to support the mission of the Alternating Hemiplegia of Childhood Foundation.

Financial Information

As a charitable 501(c)(3) organization with non-profit status the foundation is classified tax exempt. The Federal tax ID is 38-3225425. Donations to AHCF are tax deductible.

Foundation Financial Information

Foundation 990 Tax Filings

Articles of Incorporation, W-9 and IRS determination letter upon request. Contact

Foundation Policies

AHCF board members provide leadership and accountability through transparent practices, and governance policies. Provided upon request by contacting the Secretary of the Foundation:

  • Privacy Policy
  • Confidentiality and Non-disclosure Policy
  • Family Grant Policy
  • BOD Conflict of Interest Policy
  • Document Retention Policy
  • Expense Reimbursement Policy
  • Family Contact Policy
  • Photo/Media Release Policy
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