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AHC Global Connections

AHC International Alliance is a union of international AHC groups from around the world. AHCIA hosts a website with a contact directory and news from each organization


The Child Neurology Foundation connects partners from all areas of the child neurology community so those navigating the journey of disease diagnosis, management, and care have the ongoing support from those dedicated to treatments and cures.


Global Genes is committed to providing information, resources, and connections to all communities affected by rare diseases.


Rare X is partnering with the AHC community to build a Data Collection Program for AHC families. When you participate in the AHC Data Collection Program, you’ll help accelerate research and the development of new drugs, devices, and other therapies.


AHC International Media (AHCIM) is a website library of videos about AHC, families’ stories, and research and clinical professionals discussing AHC hosted by the Icelandic AHC Association.


NORD – National Organization for Rare Disorders is a patient advocacy organization dedicated to individuals with rare diseases and the organizations that serve them. NORD, is committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and patient services.

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