Dear Friend of the AHC Foundation,
As 2025 draws to a close, we reflect on the incredible progress made during our 30th anniversary year—and the many families who continue to face the daily challenges of Alternating Hemiplegia of Childhood (AHC). Every step forward in research brings renewed hope for better treatments, improved quality of life, and, ultimately, a cure.
But hope needs fuel. It needs people like you. Donate Here
This holiday season, we invite you to join us in a powerful movement to Light the Path for AHC Research in 2026. Your year-end gift will illuminate the road ahead for groundbreaking studies, innovative collaborations, and the accelerating search for answers that every AHC family deserves. Three of the projects needing funding in 2026 are:
- Duke Univ., Phase 3 Gene Therapy project for D801N & E815K mutations.
- Leiden Univ., 5-year joint international study on sleep and flunarizine.
- of Pennsylvania JumpStart Program genetics resources for AHC families.
Together, we can turn scientific potential into real progress. Together, we can bring light to those navigating the uncertainty of this rare disorder.
We are reaching out to ask for your support in raising funds for the AHC Foundation, an organization dedicated to advancing research, improving treatments, and providing hope for families like ours. Every donation, no matter the amount, helps fund scientific studies, medical care advancements, and community resources that bring us closer to finding better therapies—and, one day, a cure.
Please make your tax-deductible contribution before December 31 to help us start 2026 with strength, momentum, and determination. Checks can be mailed to our above address, or online donations can be made at www.ahckids.org.
From all of us at the AHC Foundation, thank you for being the light that guides our mission forward. We wish you peace, health, and joy in the year ahead.
With deep gratitude,
Victoria Platt
President
AHC Foundation
