The 14th International ATP1A3 Symposium, which brings together researchers, clinicians, families and associations from around the world around rare diseases linked to the ATP1A3 gene , is fast approaching. The French AHC Family Association (AFHA) is honoured and delighted to announce that the 14th ATP1A3 in disease Symposium will take place at the at the Pitié-Salpêtrière Hospital in PARIS, France.
Thursday, September 24, 2026, will be dedicated to a major meeting for associations and families affected by ATP1A3-related disorders, aiming to continue and enhance collaborative efforts among all our groups and families.
🎟️Tickets for the family reunion: https://www.helloasso.com/associations/association-francaise-de-l-hemiplegie-alternante/evenements/reunion-internationale-des-familles-ahc
Friday, September 25, and Saturday, September 26, 2026, will bring together leading scientists, geneticists, physicians, professors, and researchers actively working on the ATP1A3 gene to review current knowledge and present key medical research advancements.
Download the Welcome letter by the 2026 Organizing Committee
These pathologies, including alternating hemiplegia (AHC) , remain largely unknown and require international scientific mobilization, which is why the symposium was created.
It takes place annually and has become a key moment for:
Presenting research advances 🔬
Sharing new therapeutic approaches 💊
Strengthening international collaborations 🤝
Giving a voice to families and associations involved on a daily basis 👩👧👦
Why is this event so important?
ATP1A3 diseases mainly affect children and cause severe symptoms: hemiplegic seizures, motor disorders, cognitive difficulties, dystonic episodes…
For families, each scientific advance represents a concrete hope.
The symposium allows for:
to advance the understanding of these complex diseases,
to accelerate research projects ,
to encourage the emergence of new therapeutic approaches ,
to increase the international visibility of these rare diseases.
📆September 24, 2026 – Family Reunion
September 25 & 26 – Symposium
📍 At the Pitié-Salpêtrière Hospital,
Edmond and Lily Safra Auditorium, Paris
83 Hospital Boulevard
75013 Paris – FRANCE
🎟️Symposium tickets: https://www.helloasso.com/associations/association-francaise-de-l-hemiplegie-alternante/evenements/symposium-atp1a3-paris-2026
🎟️Tickets for the family reunion: https://www.helloasso.com/associations/association-francaise-de-l-hemiplegie-alternante/evenements/reunion-internationale-des-familles-ahc
