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The Human Phenotype Ontology (HPO) project provides an ontology of medically relevant phenotypes, disease-phenotype annotations, and algorithms. AHC is included in the HPO and provides a strategic roadmap of this disease.

Ontology is a set of concepts and categories that show their properties and their relationships. The HPO is adopted as a standard for phenotypic abnormalities within international rare disease organizations, registries, clinical labs, biomedical resources, and clinical software tools.

PHENOTYPIC ASSOCIATIONS TERM NAME FREQUENCY
Growth Failure to thrive Frequent
Head and neck Downturned corners of mouth Occasional
Exaggerated cupid’s bow Occasional
High forehead Occasional
Eye Nystagmus Frequent
Occulomotor apraxia Occasional
Ocular flutter Occasional
Mydriasis Frequent
Exotropia Frequent
Abnormal involuntary eye Frequent
Cardiovascular Arrhythmia Very rare
Abnormal T-wave Occasional
Cardiomyopathy Very rare
Cardiac conduction abnormality Occasional
Respiratory System Respiratory distress Occasional
Apnea Occasional
Aspiration Occasional
Digestive System Gastrointestinal dysmotility Very frequent
Constipation Frequent
Diarrhea Frequent
Vomiting Frequent
Anorexia Frequent
Abdominal distention Frequent
Abnormality of the GI tract Very Frequent
Musculature
Hypotonia Occasional
Rigidity Occasional
Facial hypotonia Occasional
Limbs Skewfoot Occasional
Skin, Hair, and Nails Flushing Frequent
Thin eyebrow Occasional
Pallor Frequent
Hyperhidrosis Occasional
Nervous System Bulbar signs Occasional
Abnormal pyramidal sign Occasional
Areflexia Occasional
Seizure Frequent
Ataxia Frequent
Intellectual disability Frequent
Choreoathetosis Occasional
Dysarthria Occasional
Hyperreflexia Occasional
Dystonia Frequent
Tremor Occasional
Episodic hemiplegia Very frequent
Dysphagia Frequent
Bilateral tonic-clonic seizure Occasional
Chorea Occasional
Status epilepticus Occasional
Tetraparesis Frequent
Impulsivity Occasional
Oral-pharyngeal dysphagia Frequent
Progressive neurologic deterioration Occasional
Headache Occasional
Paroxysmal dyskinesia Occasional
Delayed speech and language Frequent
Aggressive behavior Occasional
Emotional liability Occasional
Behavioral abnormality Frequent
Neurodevelopmental delay Frequent
Abnormal autonomic – nervous system physiology Frequent
Focal motor seizure Occasional
Metabolism Dehydration Occasional

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