It starts with our hands — and our hearts. For the first time, The AHC Foundation, Cure AHC, and AHC Europe are joining together in one global movement — Hands of Hope — to show the world what hope looks like when we hold it together. Now, it’s your turn: What hands uplift you and […]
You're Invited! Join us for our next AHCF Family Circle on Wednesday, November 12th at 10am PST/ 12pm CST/ 1pm EST. This is a support group for parents of individuals with AHC. Share your challenges and joys in this informal setting. Connect with others on this journey! If you have questions, please email Heather Gates […]
💜 Join us for a live webinar Wednesday the 19th @ 1:pm EST. Dr. Kevin Ess, a leading neurologist in Epilepsy and Alternating Hemiplegia of Childhood (AHC) will share insights from the front lines of research and care — what’s next for families and the path to better treatments, then answer your questions! Dr. Kevin […]
Join us for our next AHCF Family Circle on Wednesday, December 10th at 10am PST/ 12pm CST/ 1pm EST. This is a support group for parents of individuals with AHC. Share your challenges and joys in this informal setting. Connect with others on this journey! If you have questions, please email Heather Gates at Heather@ahckids.org. […]
Hello AHC families! It’s time for the AHC Valentine’s Day card exchange. This tradition began as a way to keep our children connected between family meetings, back before social media. Everyone is welcome to join, regardless of age! Each participant sends a card to all others—some choose photo cards, handmade creations, stickers, or drawings and […]
Join us for our next AHCF Family Circle on Wednesday, January 14th at 10am PST/ 12pm CST/ 1pm EST. This is a support group for parents of individuals with AHC. Share your challenges and joys in this informal setting. Connect with others on this journey! If you have questions, please email Heather Gates at Heather@ahckids.org. […]
You asked—and we’re excited to say it’s back 💙 Our apparel store is officially OPEN as a limited-time pop-up, launched to honor the meaningful days between International AHC Day and Rare Disease Day. This collection is more than apparel. It’s about visibility, connection, and proudly supporting the AHC community. Many of these designs are fan favorites, brought back […]
All about estate planning 📄 Join Protected Tomorrows’ Parent University Class 2 for an informational session breaking down the different components of estate planning. In this class, we will discuss: ➡️ What are the components ➡️ How to find the right attorney ➡️ What needs to be updated and when 📅 February 12, 2026 ⏰ […]
🫀Join AHCF for a heart-to-heart conversation with Dr. Andrew Landstrom, focused on the unique cardiac concerns faced by individuals living with Alternating Hemiplegia of Childhood. Wednesday, February 25 @ 6:00 PM EST Please click the link below to register for the event: https://tinyurl.com/5863hv3z Registration is required. All registrants will receive a confirmation email with the Zoom […]
Join us for our next AHCF Family Circle on Wednesday, March 11th at 10am PST/ 12pm CST/ 1pm EST. This is a support group for parents of individuals with AHC. Share your challenges and joys in this informal setting. Connect with others on this journey! If you have questions, please email Heather Gates at Heather@ahckids.org. […]