Community Updates

Early Bird Registration Ends April 30th! Don’t miss your chance to join the rare disease community at a lower...

Join our challenge to bring our community together and drive real change for Alternating Hemiplegia of Childhood! Here’s how...

Couple the Family Meeting with an unforgettable vacation with Family Fun in Cincinnati: A Perfect Getaway! Looking for the...

General Family Newsletter – Get Involved & Make an Impact! Our latest Family Newsletter is here! In this edition, we’re...

The 12th Symposium will be held in Barcelona, Spain November 14-15, 2024.

Your donations are being put to good use! Multiple projects are currently underway to advance AHC research and ultimately...

AHC is a 1 in a million diagnosis, making it an ultra-rare disease!

Izzie Duval, founder and owner of Wish Come True Co., understands the complex realities of AHC. As an AHCF...