Kaleidoscope of Hope is the name of this year's quilt to be raffled off at the Warriors for Kathryn event on February 2, 2024, in Cornersville, Indiana. Warriors for Kathryn 2024 Quilt Raffle Information: Quilting tradition asks for a name to be selected for a quilt. “Kaleidoscope of Hope” is the name given to this […]
The National Organization for Rare Disorders (NORD) invites you to join us for a comprehensive, supportive, and closed-door discussion about raising a rare disease child or children as a single parent. Date: Thursday, June 27, 2024 Time: 7:00 p.m. - 8:05 p.m. ET Location: Virtual via Zoom You will hear from single rare parents about […]
A 4th of July run for a cure benefiting Alternating Hemiplegia of Childhood Foundation.
Join us for our next AHCF Family Circle on Saturday, September 28th at 11am PST/ 1pm CST/ 2pm EST. This is a support group for parents of individuals with AHC. Share your challenges and joys in this informal setting. Connect with others on this journey! If you have questions, please email Heather Gates at Heather@ahckids.org. […]
Looking for the perfect family vacation? Cincinnati is a hidden gem packed with unforgettable experiences for kids and parents alike! Explore & Learn – From hands-on exhibits at the Cincinnati Museum Center to the wonders of the Newport Aquarium, every day is an adventure! Outdoor Fun – Take in the stunning riverfront at Smale Park, ride […]
Last chance! Don't miss the opportunity to meet with the expert AHC community of providers and parents on June 19, 2025. We have researchers, treating physicians, family support and more all speaking on the latest information, and helpful tips and tricks, regarding AHC. Please don’t miss this opportunity to spend time with other AHC parents, […]
The 13th ATP1A3 in Disease Symposium will take place (virtually) on 15 and 16 September 2025 in Cairns, Australia, in conjunction with the 17th International Meeting on P-Type ATPases in Health & Disease The Program of the 13th Symposium is set up to allow speakers and participants from Australia and Asia Pacific , but also from all other parts of […]
Registration is Now Open for the Dr. Nutan Sharma Webinar! We are thrilled to announce that registration is now open for our upcoming webinar with Dr. Nutan Sharma, a world-renowned leader in movement disorders. ✨ The webinar is free to attend, but registration is required. When you register, you will immediately receive a confirmation email […]
You're Invited! Join us for our next AHCF Family Circle on Wednesday, October 8th at 10am PST/ 12pm CST/ 1pm EST. This is a support group for parents of individuals with AHC. Share your challenges and joys in this informal setting. Connect with others on this journey! If you have questions, please email Heather Gates […]
Parent University: Sibling Panel – The Future Without UsMany of us hope that siblings will one day step into our shoes — but how do they really feel about that? What do they need to know, and when is the right time to share it?Join Protected Tomorrows’ Parent University on October 9th, 12:00–1:00 PM CT […]