NORD Breakthrough Summit
Check out this information-filled event!
Check out this information-filled event!
Parenting a child with AHC means facing moments of stress, resilience, purpose, and anticipatory grief. Join counselor Brad Thompson, MA, LPC-S for a heartfelt session on finding joy and peace — even through naivety and denial. Practical tools. Real talk. Hope you can hold on to. Wednesday, October 22 12:00 – 1:00 PM CST (40-minute […]
Our year-end campaign is here — a season of hope, movement, and possibility for every individual living with Alternating Hemiplegia of Childhood. You Can Help Light the Path in Three ways: Send a letter to family members, friends, colleagues, or school/church members - asking for help in lighting the path - then ask them to […]
Dear Friend of the AHC Foundation, As 2025 draws to a close, we reflect on the incredible progress made during our 30th anniversary year—and the many families who continue to face the daily challenges of Alternating Hemiplegia of Childhood (AHC). Every step forward in research brings renewed hope for better treatments, improved quality of life, […]
It starts with our hands — and our hearts. For the first time, The AHC Foundation, Cure AHC, and AHC Europe are joining together in one global movement — Hands of Hope — to show the world what hope looks like when we hold it together. Now, it’s your turn: What hands uplift you and […]
You're Invited! Join us for our next AHCF Family Circle on Wednesday, November 12th at 10am PST/ 12pm CST/ 1pm EST. This is a support group for parents of individuals with AHC. Share your challenges and joys in this informal setting. Connect with others on this journey! If you have questions, please email Heather Gates […]
💜 Join us for a live webinar Wednesday the 19th @ 1:pm EST. Dr. Kevin Ess, a leading neurologist in Epilepsy and Alternating Hemiplegia of Childhood (AHC) will share insights from the front lines of research and care — what’s next for families and the path to better treatments, then answer your questions! Dr. Kevin […]
Join us for our next AHCF Family Circle on Wednesday, December 10th at 10am PST/ 12pm CST/ 1pm EST. This is a support group for parents of individuals with AHC. Share your challenges and joys in this informal setting. Connect with others on this journey! If you have questions, please email Heather Gates at Heather@ahckids.org. […]
Join us for our next AHCF Family Circle on Wednesday, January 14th at 10am PST/ 12pm CST/ 1pm EST. This is a support group for parents of individuals with AHC. Share your challenges and joys in this informal setting. Connect with others on this journey! If you have questions, please email Heather Gates at Heather@ahckids.org. […]
The French AHC Family Association (AFHA) is honoured and delighted to announce that the 14th ATP1A3 in disease Symposium will take place at the at the Pitié-Salpêtrière Hospital in PARIS, France from Thursday 24th September to Saturday 26th September 2026. Thursday, September 24th, 2026 will be for meeting associations and families concerned by ATP1A3 diseases. The scientific meeting will be on Friday […]