AHC families and caregivers, Family Circle will be on summer break from June through August, and we look forward to gathering again in September! We. Are. Here. If you're looking for connection, support, or resources during the summer months, please reach out to AHCF's Family Support Team at heather@ahckids.org. Wishing you a safe, relaxing, and […]
Registration is now open for our Caregiver’s Compass, a free virtual course for parents and caregivers of children with complex health care needs. Caregiving often means focusing on everyone else’s needs first. This course gives caregivers time to step back and learn ways to support their own well-being while continuing to care for someone they […]
Your Child's AHC Genetic Results: What They Mean—and Why They Matter 📅 Tuesday, July 28 🕖 7:00 PM EDT https://accountingdepartment.zoom.us/meeting/register/-sVoMJcKSkGgMuvXrLIuAg Many individuals with Alternating Hemiplegia of Childhood (AHC) have a change, or mutation, in the ATP1A3 gene—but understanding what those results mean can feel overwhelming. Join us for a special webinar with Suzanne D. DeBrosse, MD, […]
Description - “School” can mean many things: - If your child is young, what is an IEP? - If your child is older, what can you expect to be available? - Are there really appropriate school experiences for your child after high school? Date & Time Aug 13, 2026 12:00 PM Central Time (US and […]
📅 𝗔𝘂𝗴𝘂𝘀𝘁 𝟭𝟯𝘁𝗵 🕖 𝟳:𝟬𝟬 𝗽𝗺 𝗘𝗗𝗧 Register Here - https://tinyurl.com/m7dzhcd4 𝗪𝗵𝘆 𝗶𝘀 𝗺𝘆 𝗰𝗵𝗶𝗹𝗱 𝗯𝗲𝗵𝗮𝘃𝗶𝗻𝗴 𝘁𝗵𝗶𝘀 𝘄𝗮𝘆? It's a question many AHC parents have asked themselves. Behavior can be one of the most confusing and emotionally exhausting parts of living with AHC. It can change over time, look different from one child to the […]