Events

In this thoughtful session about protection, we will cover: How do you best protect what you’ve built for now and for the future? Do you have the right kind of […]

The 14th International ATP1A3 Symposium, which brings together researchers, clinicians, families and associations from around the world around rare diseases linked to the ATP1A3 gene , is fast approaching. The […]

Register Here: Grief can take many forms — and for families caring for someone with AHC, it can sometimes be difficult to even name what we are feeling. On September […]