“What We've Learned from the outcome study of 115 Individuals with AHC: Insights for Families and Future Treatments" View Here - https://www.youtube.com/watch?v=k12e9nL-L48&t=228s The Natural History Study of AHC which was […]
Registration is now open for our Caregiver’s Compass, a free virtual course for parents and caregivers of children with complex health care needs. Caregiving often means focusing on everyone else’s […]
Your Child's AHC Genetic Results: What They Mean—and Why They Matter 📅 Tuesday, July 28 🕖 7:00 PM EDT https://accountingdepartment.zoom.us/meeting/register/-sVoMJcKSkGgMuvXrLIuAg Many individuals with Alternating Hemiplegia of Childhood (AHC) have a […]
Description - “School” can mean many things: - If your child is young, what is an IEP? - If your child is older, what can you expect to be available? […]
The 14th International ATP1A3 Symposium, which brings together researchers, clinicians, families and associations from around the world around rare diseases linked to the ATP1A3 gene , is fast approaching. The […]
One year from now, we'll be calling this place home. 💜 We're excited to share the host hotel for the 2027 AHC Foundation Family Meeting! 🏨 Marriott CityPlace at Springwoods […]