Caregivers Compass Begins Soon – Register Now
Registration is now open for our Caregiver’s Compass, a free virtual course for parents and caregivers of children with complex health care needs. Caregiving often means focusing on everyone else’s […]
Registration is now open for our Caregiver’s Compass, a free virtual course for parents and caregivers of children with complex health care needs. Caregiving often means focusing on everyone else’s […]
Your Child's AHC Genetic Results: What They Mean—and Why They Matter 📅 Tuesday, July 28 🕖 7:00 PM EDT https://accountingdepartment.zoom.us/meeting/register/-sVoMJcKSkGgMuvXrLIuAg Many individuals with Alternating Hemiplegia of Childhood (AHC) have a […]
Description - “School” can mean many things: - If your child is young, what is an IEP? - If your child is older, what can you expect to be available? […]
📅 𝗔𝘂𝗴𝘂𝘀𝘁 𝟭𝟯𝘁𝗵 🕖 𝟳:𝟬𝟬 𝗽𝗺 𝗘𝗗𝗧 Register Here - https://tinyurl.com/m7dzhcd4 𝗪𝗵𝘆 𝗶𝘀 𝗺𝘆 𝗰𝗵𝗶𝗹𝗱 𝗯𝗲𝗵𝗮𝘃𝗶𝗻𝗴 𝘁𝗵𝗶𝘀 𝘄𝗮𝘆? It's a question many AHC parents have asked themselves. Behavior can be […]
In this thoughtful session about protection, we will cover: How do you best protect what you’ve built for now and for the future? Do you have the right kind of […]
The 14th International ATP1A3 Symposium, which brings together researchers, clinicians, families and associations from around the world around rare diseases linked to the ATP1A3 gene , is fast approaching. The […]
In June of 2027, we'll be calling this place home. 💜 We're excited to share the host hotel for the 2027 AHC Foundation Family Meeting! 🏨 Marriott CityPlace at Springwoods […]