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ABLE national resource center

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Educational tutorials, advocates, and future planning

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NORD’s MedicAlert assistance program
https://rarediseases.org/wp-content/uploads/2021/02/NRD-2139-Medic-Alert-Assistance_FNL-1.pdf

Wearable medical ID’s
https://store.medicalert.org/medical-id

Seizure first aid training
https://learn.epilepsy.com/

Home equipment and supplies assistance.
https://oley.org/general/recommended_links.asp?cc=40782

Patient advocacy organization dedicated to individuals with rare diseases.
NORD