NORD’s MedicAlert assistance program
https://rarediseases.org/wp-content/uploads/2021/02/NRD-2139-Medic-Alert-Assistance_FNL-1.pdf
NORD’s MedicAlert assistance program
https://rarediseases.org/wp-content/uploads/2021/02/NRD-2139-Medic-Alert-Assistance_FNL-1.pdf
Wearable medical ID’s
https://store.medicalert.org/medical-id
Seizure first aid training
https://learn.epilepsy.com/
Gait trainers
https://www.adaptivemall.com/seemore/gaittrainers1.html?product_list_limit
Freedom Designs tilt-in-space wheelchairs.
http://www.freedomdesigns.com/Wheelchairs.html
Invacare power and manual wheelchairs.
https://pro.invacare.com/clp/Mobility
Public policy, advocacy, and resource group.
ARC
The Charlie Foundation for ketogenic therapies
The Oley Foundation
Home nutrition support and advocacy group
https://oley.org
Support families and healthcare professionals to advance the ketogenic diet for the treatment of pediatric epilepsy.
http://ketohope.org