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ASO project description and what is needed going forward

The natural history database is getting an update, and we need your help

We are working with top scientists to edit out the mutation that causes AHC

Transgene therapy is another avenue of research that we are pursuing.

The AHC Foundation has published an Emergency Room Protocol. This document intends to educate doctors unfamiliar with AHC and your child’s specific medical needs.
Especially in this time of COVID-19 viral infections where your child may need to be admitted for treatment, this document will accompany your child and be passed off to caregivers for their reference.

Vetted by our Medical Advisory Board, this will serve as a diverse and valuable tool for the ER, the school nurse, and other needs.