Sylvia and her husband John joined the AHC community after their daughter Paige was diagnosed with Alternating of Hemiplegia (AHC). Their journey eventually led them to relocate to Houston to be near specialized care Paige needs.
Many families know Sylvia as “Dr Mom” – A source of encouragement, honesty and support for caregivers navigating the of realities of AHC and complex medical care.
Through her work on the AHCF communications team, Sylvia has become a meaningful voice for family support, emotional connection, perseverance, and helping others feel less alone.
While Sylvia deeply believes in the pursuit of a cure, she also believes in caring for families along the journey and improving the life for those affected by AHC every day.
We are grateful to welcome Sylvia to the AHC Foundation Board of Directors.
