Join us for an upcoming 𝗔𝗛𝗖 𝗥𝗲𝘀𝗲𝗮𝗿𝗰𝗵 𝗪𝗲𝗯𝗶𝗻𝗮𝗿 featuring 𝗗𝗿. 𝗡𝘂𝘁𝗮𝗻 𝗦𝗵𝗮𝗿𝗺𝗮 𝗳𝗿𝗼𝗺 𝗛𝗮𝗿𝘃𝗮𝗿𝗱 𝗨𝗻𝗶𝘃𝗲𝗿𝘀𝗶𝘁𝘆 𝗮𝗻𝗱 𝗠𝗮𝘀𝘀𝗮𝗰𝗵𝘂𝘀𝗲𝘁𝘁𝘀 𝗚𝗲𝗻𝗲𝗿𝗮𝗹 𝗛𝗼𝘀𝗽𝗶𝘁𝗮𝗹. 📅 March 25th ⏰ 7:00 PM EDT Register Here: 🔗 https://tinyurl.com/ypdh3wua Dr. Sharma will introduce a 𝗻𝗲𝘄 𝘁𝘄𝗼-𝘆𝗲𝗮𝗿 𝗔𝗛𝗖 𝘀𝘁𝘂𝗱𝘆 designed to better understand how AHC evolves from childhood through adulthood. This first-of-its-kind study will bring […]
Bring your questions and join the conversation. Date: April 8th Time: 1:00 pm EDT Register: https://tinyurl.com/bdex5x99 Join us for a special 𝗹𝗶𝘃𝗲 𝗤&𝗔 𝘄𝗲𝗯𝗶𝗻𝗮𝗿 𝘄𝗶𝘁𝗵 𝗗𝗲𝗻𝗶𝘀𝗲 𝗣𝗼𝘁𝘁𝗲𝗿, 𝗥𝗗𝗡, founder of 𝗔𝗱𝘃𝗮𝗻𝗰𝗲𝗱 𝗞𝗲𝘁𝗼𝗴𝗲𝗻𝗶𝗰 𝗧𝗵𝗲𝗿𝗮𝗽𝗶𝗲𝘀, who brings over 𝟯𝟯 𝘆𝗲𝗮𝗿𝘀 𝗼𝗳 𝗲𝘅𝗽𝗲𝗿𝗶𝗲𝗻𝗰𝗲 𝗮𝘀 𝗮 𝗥𝗲𝗴𝗶𝘀𝘁𝗲𝗿𝗲𝗱 𝗗𝗶𝗲𝘁𝗶𝘁𝗶𝗮𝗻 𝗡𝘂𝘁𝗿𝗶𝘁𝗶𝗼𝗻𝗶𝘀𝘁 𝗮𝗻𝗱 𝟭𝟳 𝘆𝗲𝗮𝗿𝘀 𝘀𝗽𝗲𝗰𝗶𝗮𝗹𝗶𝘇𝗶𝗻𝗴 𝗶𝗻 𝗸𝗲𝘁𝗼𝗴𝗲𝗻𝗶𝗰 𝗺𝗲𝘁𝗮𝗯𝗼𝗹𝗶𝗰 𝘁𝗵𝗲𝗿𝗮𝗽𝘆. When epilepsy […]
In this in-depth session about government benefits, we will cover: Can you ever know everything about the benefits available to you and your family? How do you know if you have applied for everything possible? We’ll be talking about SSI, SSDI, DAC, Medicare, Medicaid, SNAP, and more. When: April 16, 2026 12:00 pm - 1:00 […]
We’re excited to share that the AHC Foundation has been invited to attend the RAREAdvocate Development (RAD) Brain Workshop this May in Boston! This three-day intensive, hosted by Global Genes, the Rare Epilepsy Network (REN), and Mahzi Therapeutics, brings together rare disease advocates who are actively accelerating research in their neurological conditions. From drug development […]
Join us for our next AHCF Family Circle on Wednesday, May 13th at 10am PST/ 12pm CST/ 1pm EST. This is a support group for parents of individuals with AHC. Share your challenges and joys in this informal setting. Connect with others on this journey! If you have questions, please email Heather Gates at Heather@ahckids.org. […]
Join us for our next AHCF Family Circle on Wednesday, May 13th at 10am PST/ 12pm CST/ 1pm EST. This is a support group for parents of individuals with AHC. Share your challenges and joys in this informal setting. Connect with others on this journey! If you have questions, please email Heather Gates at Heather@ahckids.org. […]
In this exciting session about respite, we will cover: Have you ever thought it is just not possible to have a vacation? Or maybe just some respite? How does that fit into your life? Where can you find resources that match the needs of your family? Click Here To Register
Mary Anne Ehlert of Protected Tomorrows presents: What’s So Special about Special Needs Planning. Webinar event: May 20th at 6:00 p.m. Central Time Registration link: https://us02web.zoom.us/webinar/register/WN_r_SXL-kTQ6W02_onrknsEQ Join us for an enlightening presentation that includes: An overview of the Protected Tomorrows Mission and an understanding of how we work with families to Construct a Framework for […]
Protected Tomorrows Parent University is presenting a free webinar on June 11th. Everyone who has an interest in the Special Needs Community is invited. In this important session about ABLE Accounts, we will cover: The basics of ABLE How ABLE differs by state How to stay out of trouble. What is the best way to […]
“What We've Learned from the outcome study of 115 Individuals with AHC: Insights for Families and Future Treatments" Register Here- https://accountingdepartment.zoom.us/meeting/register/DDXOrtUhQj6CrGrqyzjA8A The Natural History Study of AHC which was published recently (https://onlinelibrary.wiley.com/doi/epdf/10.1002/cns3.70037) and was highlighted as the top article of the year in the North American Child Neurology Society, has major implications for the care […]