You askedโand weโre excited to say itโs back ๐ Our apparel store is officiallyย OPENย as a limited-time pop-up, launched to honor the meaningful days betweenย International AHC Day and Rare Disease Day. This collection is more than apparel. Itโs about visibility, connection, and proudly supporting the AHC community. Many of these designs are fan favorites, brought back […]
All about estate planning ๐ Join Protected Tomorrowsโ Parent University Class 2 for an informational session breaking down the different components of estate planning. In this class, we will discuss: โก๏ธ What are the components โก๏ธ How to find the right attorney โก๏ธ What needs to be updated and when ๐ February 12, 2026 โฐ […]
๐ซJoin AHCF for a heart-to-heart conversation with Dr. Andrew Landstrom, focused on the unique cardiac concerns faced by individuals living with Alternating Hemiplegia of Childhood. Wednesday, February 25 @ย 6:00 PM ESTย Please click the link below to register for the event: https://tinyurl.com/5863hv3z Registration is required. All registrants will receive a confirmation email with the Zoom […]
Join us for our next AHCF Family Circle on Wednesday, March 11th at 10am PST/ 12pm CST/ 1pm EST. This is a support group for parents of individuals with AHC. Share your challenges and joys in this informal setting. Connect with others on this journey! If you have questions, please email Heather Gates at Heather@ahckids.org. […]
Demystifying debt ๐ต Join Protected Tomorrowsโ Parent University Class 3 for a candid conversation regarding debt. In this class, we will discuss: โก๏ธIs there really such a thing as good debt? โก๏ธ When should you pay down debt? โก๏ธ Is there a creative way to use debt to fund a special needs trust? ๐ March […]
The Caregiverโs Compass is a free, four-week virtual course designed for parents and caregivers who want practical tools and meaningful connection. Throughout this interactive series, caregivers will: โข Learn strategies for managing stress โข Strengthen communication skills โข Build tools to support mental wellbeing โข Connect in a supportive, community-centered space Each live session is […]
Join us for an upcoming ๐๐๐ ๐ฅ๐ฒ๐๐ฒ๐ฎ๐ฟ๐ฐ๐ต ๐ช๐ฒ๐ฏ๐ถ๐ป๐ฎ๐ฟ featuring ๐๐ฟ. ๐ก๐๐๐ฎ๐ป ๐ฆ๐ต๐ฎ๐ฟ๐บ๐ฎ ๐ณ๐ฟ๐ผ๐บ ๐๐ฎ๐ฟ๐๐ฎ๐ฟ๐ฑ ๐จ๐ป๐ถ๐๐ฒ๐ฟ๐๐ถ๐๐ ๐ฎ๐ป๐ฑ ๐ ๐ฎ๐๐๐ฎ๐ฐ๐ต๐๐๐ฒ๐๐๐ ๐๐ฒ๐ป๐ฒ๐ฟ๐ฎ๐น ๐๐ผ๐๐ฝ๐ถ๐๐ฎ๐น. ๐ March 25th โฐ 7:00 PM EDT Register Here: ๐ https://tinyurl.com/ypdh3wua Dr. Sharma will introduce a ๐ป๐ฒ๐ ๐๐๐ผ-๐๐ฒ๐ฎ๐ฟ ๐๐๐ ๐๐๐๐ฑ๐ designed to better understand how AHC evolves from childhood through adulthood. This first-of-its-kind study will bring […]
Bring your questions and join the conversation. Date: April 8th Time: 1:00 pm EDT Register: https://tinyurl.com/bdex5x99 Join us for a special ๐น๐ถ๐๐ฒ ๐ค&๐ ๐๐ฒ๐ฏ๐ถ๐ป๐ฎ๐ฟ ๐๐ถ๐๐ต ๐๐ฒ๐ป๐ถ๐๐ฒ ๐ฃ๐ผ๐๐๐ฒ๐ฟ, ๐ฅ๐๐ก, founder of ๐๐ฑ๐๐ฎ๐ป๐ฐ๐ฒ๐ฑ ๐๐ฒ๐๐ผ๐ด๐ฒ๐ป๐ถ๐ฐ ๐ง๐ต๐ฒ๐ฟ๐ฎ๐ฝ๐ถ๐ฒ๐, who brings over ๐ฏ๐ฏ ๐๐ฒ๐ฎ๐ฟ๐ ๐ผ๐ณ ๐ฒ๐ ๐ฝ๐ฒ๐ฟ๐ถ๐ฒ๐ป๐ฐ๐ฒ ๐ฎ๐ ๐ฎ ๐ฅ๐ฒ๐ด๐ถ๐๐๐ฒ๐ฟ๐ฒ๐ฑ ๐๐ถ๐ฒ๐๐ถ๐๐ถ๐ฎ๐ป ๐ก๐๐๐ฟ๐ถ๐๐ถ๐ผ๐ป๐ถ๐๐ ๐ฎ๐ป๐ฑ ๐ญ๐ณ ๐๐ฒ๐ฎ๐ฟ๐ ๐๐ฝ๐ฒ๐ฐ๐ถ๐ฎ๐น๐ถ๐๐ถ๐ป๐ด ๐ถ๐ป ๐ธ๐ฒ๐๐ผ๐ด๐ฒ๐ป๐ถ๐ฐ ๐บ๐ฒ๐๐ฎ๐ฏ๐ผ๐น๐ถ๐ฐ ๐๐ต๐ฒ๐ฟ๐ฎ๐ฝ๐. When epilepsy […]
In this in-depth session about government benefits, we will cover: Can you ever know everything about the benefits available to you and your family? How do you know if you have applied for everything possible? Weโll be talking about SSI, SSDI, DAC, Medicare, Medicaid, SNAP, and more. When: April 16, 2026ย ย ย ย 12:00 pm - 1:00 […]
Weโre excited to share that the AHC Foundation has been invited to attend the RAREAdvocate Development (RAD) Brain Workshop this May in Boston! This three-day intensive, hosted by Global Genes, the Rare Epilepsy Network (REN), and Mahzi Therapeutics, brings together rare disease advocates who are actively accelerating research in their neurological conditions. From drug development […]