RARE Advocate Development (RAD) Brain Workshop
We’re excited to share that the AHC Foundation has been invited to attend the RAREAdvocate Development (RAD) Brain Workshop this May in Boston! This three-day intensive, hosted by Global Genes, […]
We’re excited to share that the AHC Foundation has been invited to attend the RAREAdvocate Development (RAD) Brain Workshop this May in Boston! This three-day intensive, hosted by Global Genes, […]
Join us for our next AHCF Family Circle on Wednesday, May 13th at 10am PST/ 12pm CST/ 1pm EST. This is a support group for parents of individuals with AHC. […]
Join us for our next AHCF Family Circle on Wednesday, May 13th at 10am PST/ 12pm CST/ 1pm EST. This is a support group for parents of individuals with AHC. […]
In this exciting session about respite, we will cover: Have you ever thought it is just not possible to have a vacation? Or maybe just some respite? How does that […]
Mary Anne Ehlert of Protected Tomorrows presents: What’s So Special about Special Needs Planning. Webinar event: May 20th at 6:00 p.m. Central Time Registration link: https://us02web.zoom.us/webinar/register/WN_r_SXL-kTQ6W02_onrknsEQ Join us for an […]
AHC families and caregivers, Family Circle will be on summer break from June through August, and we look forward to gathering again in September! We. Are. Here. If you're looking […]
Protected Tomorrows Parent University is presenting a free webinar on June 11th. Everyone who has an interest in the Special Needs Community is invited. In this important session about ABLE […]
“What We've Learned from the outcome study of 115 Individuals with AHC: Insights for Families and Future Treatments" View Here - https://www.youtube.com/watch?v=k12e9nL-L48&t=228s The Natural History Study of AHC which was […]
Registration is now open for our Caregiver’s Compass, a free virtual course for parents and caregivers of children with complex health care needs. Caregiving often means focusing on everyone else’s […]
Your Child's AHC Genetic Results: What They Mean—and Why They Matter 📅 Tuesday, July 28 🕖 7:00 PM EDT https://accountingdepartment.zoom.us/meeting/register/-sVoMJcKSkGgMuvXrLIuAg Many individuals with Alternating Hemiplegia of Childhood (AHC) have a […]