Events

Registration is now open for our Caregiver’s Compass, a free virtual course for parents and caregivers of children with complex health care needs. Caregiving often means focusing on everyone else’s […]

Description - “School” can mean many things: - If your child is young, what is an IEP? - If your child is older, what can you expect to be available? […]

The 14th International ATP1A3 Symposium, which brings together researchers, clinicians, families and associations from around the world around rare diseases linked to the ATP1A3 gene , is fast approaching. The […]