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Surehands home mobility lifts with options for ceiling, mobile, or wall to wall with a wide range of slings and body support.

ABLE national resource center

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Educational tutorials, advocates, and future planning

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NORD’s MedicAlert assistance program
https://rarediseases.org/wp-content/uploads/2021/02/NRD-2139-Medic-Alert-Assistance_FNL-1.pdf

Northshore incontinence bed pads
https://www.northshorecare.com/incontinence-products/incontinence-bed-pads

Oley Foundation for home nutrition support- intravenous and enteral tube feeding.
https://oley.org/default.aspx

Home equipment and supplies assistance.
https://oley.org/general/recommended_links.asp?cc=40782

Patient advocacy organization dedicated to individuals with rare diseases.
NORD