Alternating Hemiplegia of Childhood Foundation
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Research Update
2021 saw advances in a number of projects sponsored by the AHC organizations. Here is an update of where we are today in each of them: 1. The AAV Project: AAV-Mediated Gene Therapy We are continuing to assess… Read More
AAV Project
With funds raised from the AHC Foundation, we hope to develop a cure for all of our AHC families suffering from AHC. We believe a path has been identified to a viable permanent treatment: gene therapy. Gene therapy provides a path to a cure for AHC. A similar approach has already been successful in many diseases.
Rare-X Data Collection
The AHC community is partnering with RARE-X, a 501(c)(3) nonprofit organization, to build a Data Collection Program for AHC families. When you participate in the AHC Data Collection Program, you’ll help accelerate research and the development of new drugs, devices, and other therapies.
Community
The AHC Foundation is committed to being the foremost source of information and support for the AHC Community. With the various channels we use to connect with our families, and help families connect with each other, the AHCF has… Read More
The Foundation
Our mission is to find the cause(s) of AHC, develop effective treatments and ultimately find a cure, while providing support to the families and children with AHC by funding research to accomplish these goals.Secondarily, we strive to promote proper diagnosis, educate health care professionals, the public and related organizations, encourage the worldwide exchange of information and advance the development of an international database of all AHC patients. Learn MoreThrough research, education and family support, we have
ONE MISSION: END AHC
- Research Update
- Rare-X Data Collection
- Rare will be...
- CRISPR Research Funded
- Medications: Do No...
- Research Funded
- 2020 Great Non...
- New Honorarium!
- Happy Birthday Violet!
- Happy Birthday Kathleen!
Research Update
2021 saw advances in a number of projects sponsored by the AHC organizations. Here is an update of where we are today in each of them: 1. The AAV Project: AAV-Mediated Gene Therapy We are continuing to assess… Read More
Rare-X Data Collection
The AHC Foundation with Hope for Annabel and CureAHC are collaborating with RARE-X to build a data collection program for AHC families. Click here to learn more about this patient owned data hub that can connect all the… Read More
Rare will be the new king
Rarity in our world is often a very good thing. All of the most valuable things in our world are so because they are rare. The less of most any one thing, the more desired it is, and… Read More
CRISPR Research Funded
The AHC Foundation is delighted to announce a partnership with Dr. David Liu’s laboratory at the Broad Institute and Harvard University to investigate gene editing as a potential therapy for AHC. The work of Dr. Liu and his… Read More
Medications: Do No Harm
The second collaborative webinar is set for January 16th 1pm eastern! “Medication: Do No Harm” will be a panel style discussion of medications applied to AHC. The moderated format of the presentation will present questions submitted by the… Read More
Research Funded
On behalf of the Alternating Hemiplegia of Childhood Foundation (AHCF) we are pleased to announce an award of $173,419.00 to the Department of Pharmacology, Northwestern University, Feinberg School of Medicine for the project “Exploring Mechanisms and the Therapeutic… Read More
2020 Great Non Profits Badge
The AHCF has earned its 2020 Great Non-Profits badge! Thanks to the volunteers and families for helping us with your nominations! The GreatNonprofits Top-Rated Awards is the one and only people’s choice award where volunteers, donors, and people… Read More
New Honorarium!
Check out a new story of an old family! Our latest addition to the WHO IS AHC section of our site is Kiley Andrasco, a 19 year-old AHC patient and daughter. Thank you for sharing this story! http://ahckids.org/kileyandrasco/… Read More
Happy Birthday Violet!
We get a double helping of Birthday Wishes in the AHC community today! Happy birthday Violet! May your day be strong and happy.
Happy Birthday Kathleen!
Big Happy Birthday wishes going out to San Francisco are to Kathleen Egan! Hoping for a strong day for you and your family! What a great day to race!
