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Empowering Families
and Professionals

The AHCF provides opportunities for collaboration, the latest in AHC literature and research education, and resources to empower AHC families and healthcare professionals as they care for individuals with AHC.

How We’re Making a Difference

Donating to the AHC Foundation allows us to fund the foremost research to end AHC, providing hope to AHC families around the world.

Over 3 Million raised for global research
Provide $5,000 annually to support AHC families in need
Over 90 cents of every dollar goes to our mission
World's largest foundation dedicated to AHC

Recent News & Updates

AHC Update at Lurie Childen’s Hospital

Our Medical Advisory Board members, Dr. Sho Yano and Dr. Ken Silver, did a joint presentation on May 4, 2024, on the latest information on AHC related to ATP1A3 at Lurie Children’s Hospital for the Neurology department. They did a great job introducing the complexities of ATP1A3 and educating the staff about AHC. One topic of note – the time it takes to diagnose an AHC patient now is measured in weeks vs. the years it took when Dr. Silver started 20 years ago.

Upcoming Events

Family Meeting 2025

Exciting news coming soon! We have big plans for our 2025 family meeting. It’s a great time to meet a committed, wonderful group of people determined to find a cure. You’ll also experience in person an amazing and supportive community and learn about the latest research. Follow us on Facebook for the latest news.

AHCF relies entirely on volunteers

Every hour donated has a lasting impact on the lives of those with AHC! There are many ways to show your support, find out how you can get involved today.

Learn about our Research

AHCF is at the forefront of advancing cutting edge research to find a treatment and a cure for this one in a million disorder.