Alternating Hemiplegia of Childhood Foundation
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Rare-X Data Collection
The AHC Foundation with Hope for Annabel and CureAHC are collaborating with RARE-X to build a data collection program for AHC families. Click here to learn more about this patient owned data hub that can connect all the… Read More
AAV Project
With funds raised from the AHC Foundation, we hope to develop a cure for all of our AHC families suffering from AHC. We believe a path has been identified to a viable permanent treatment: gene therapy. Gene therapy provides a path to a cure for AHC. A similar approach has already been successful in many diseases.
Rare-X Data Collection
The AHC community is partnering with RARE-X, a 501(c)(3) nonprofit organization, to build a Data Collection Program for AHC families. When you participate in the AHC Data Collection Program, you’ll help accelerate research and the development of new drugs, devices, and other therapies.
Community
The AHC Foundation is committed to being the foremost source of information and support for the AHC Community. With the various channels we use to connect with our families, and help families connect with each other, the AHCF has… Read More
The Foundation
Our mission is to find the cause(s) of AHC, develop effective treatments and ultimately find a cure, while providing support to the families and children with AHC by funding research to accomplish these goals.Secondarily, we strive to promote proper diagnosis, educate health care professionals, the public and related organizations, encourage the worldwide exchange of information and advance the development of an international database of all AHC patients. Learn MoreThrough research, education and family support, we have
ONE MISSION: END AHC
Race for hope
There are 6,000+ rare diseases. AHC was first noted in the 1970s; described as an unusual disorder in eight children who demonstrated intermittent episodes of weakness, affecting first one side of the body, then the other, with onset… Read More
New Race Gear
The Race to End AHC looks different this year, and so does our gear! Visit the store to check out this year’s new t-shirt look and stock up on some classics like bandanas, car magnets, and the fan… Read More
Let’s Party
The last two years we’ve had incredible race day parties all over the world. We still want to celebrate again together this year, just at the finish line instead! Gather your family and friends to celebrate your accomplishment… Read More
We need you!
The AHC community has a remarkable network of strong families and friends that work hard to raise money every year for research and family support. The best way to support these AHC families is by encouraging family and… Read More
RACE to END AHC
Registration is now open for our 3rd Annual Race to End AHC and it’s going to be our most exciting year yet! This year we’re connecting racers better than ever by using a digital race platform, My Virtual… Read More
