Helping families better understand AHC. https://Familyreferenceguide.tiiny.site
Last fall, the AHC Foundation was selected to participate in the Genetic Counseling Student Exchange (GCSX) Jumpstart Program through the Orphan Disease Center at the University of Pennsylvania. Today, we’re proud to share the second educational resource to come from that collaboration—the AHCF Family Reference Guide.
Developed by genetic counseling student Taylor Salvigsen, in collaboration with The AHC Foundation and under the guidance of Dr. Kathryn J. Swoboda, member of the AHCF Medical Advisory Board and a longtime leader in AHC research and clinical care, this practical resource was created to help families, caregivers, educators, and others better understand AHC.
Whether you’re newly diagnosed or have been living with AHC for years, we hope this guide becomes a trusted resource you’ll return to often and feel confident sharing with the people who support your journey.
Our sincere thanks to Taylor, Dr. Swoboda, and the Orphan Disease Center for helping make this resource possible.
Download your free copy here or visit www.ahckids.org.
