Introducing the AHC Clinical Reference Guide https://ahcclinicalreferenceguide.tiiny.site/
Last fall, the AHC Foundation was selected to participate in the GCSX Jumpstart Program through the Orphan Disease Center at the University of Pennsylvania. Partnering with Taylor Salvigsen of the University of Pittsburgh Genetic Counseling Program, we set out to create the kind of educational resources our community has long been asking for—resources that help explain AHC to others.
Today, we’re proud to share the first resource in this new educational series: the AHC Clinical Reference Guide.
Developed in collaboration with the AHC Foundation and reviewed by our Medical Advisory Board, this evidence-based guide is designed to support healthcare professionals caring for individuals with Alternating Hemiplegia of Childhood. It brings together current information on diagnosis, evaluation, management, and clinical best practices in one practical reference.
This is just the beginning. A companion guide for families, caregivers, educators, and others who support individuals living with AHC will be released soon.
The AHC Clinical Reference Guide is now available at ahckids.org or by using the link below.
https://ahcclinicalreferenceguide.tiiny.site
A special thank you to Taylor Salvigsen and the University of Pittsburgh Genetic Counseling Program for their collaboration, expertise, and dedication to this project. https://ahcclinicalreferenceguide.tiiny.site/
