Newsroom

Early Bird Registration Ends April 30th! Don’t miss your chance to join the rare disease community at a lower...

Share the June AHCF Family Meeting on social media. Win prizes. Check out the details! Join this fun contest...

General Family Newsletter – Get Involved & Make an Impact! Our latest Family Newsletter is here! In this edition, we’re...

The 12th Symposium will be held in Barcelona, Spain November 14-15, 2024.

Dr. All George explains his involvement in pursuing a cure or treatment for AHC. He and his team are...

Alexander Sousa joins our research series to discuss how the application of biological tools that make precise changes in...

Your donations are being put to good use! Multiple projects are currently underway to advance AHC research and ultimately...

AHC is a 1 in a million diagnosis, making it an ultra-rare disease!

Izzie Duval, founder and owner of Wish Come True Co., understands the complex realities of AHC. As an AHCF...

Dr. George gave a great talk on ASO Research back in October. If you missed it you can view it...