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We have an update from Marks Marine Pharmacy regarding importation of medications to the US. They said that the...

Changes to U.S. customs procedures are scheduled to take effect October 22, 2026 and may disrupt or delay prescription...

Changing the Channel link to webinar 𝗪𝗵𝘆 𝗶𝘀 𝗺𝘆 𝗰𝗵𝗶𝗹𝗱 𝗯𝗲𝗵𝗮𝘃𝗶𝗻𝗴 𝘁𝗵𝗶𝘀 𝘄𝗮𝘆? It’s a question many AHC parents...

EXCITING NEWS FOR THE AHC COMMUNITY! 🚨 Aspartes Pharmaceuticals has announced that the FDA has granted Orphan Drug Designation...

https://ahckids.org/webinar-replay-…-why-they-matter/ Many individuals with Alternating Hemiplegia of Childhood (AHC) have a change, or mutation, in the ATP1A3 gene—but understanding...

The AHC Foundation is proud to join organizations across the country in urging Congress to make Medicare telehealth access...

Pediatric Epilepsies & Rare CNS Gene Editing Platform (PERC) accelerates the development of precision genetic medicines for severe childhood...

Helping families better understand AHC. https://Familyreferenceguide.tiiny.site Last fall, the AHC Foundation was selected to participate in the Genetic Counseling...

Something new from AHCF! Read the July AHCF Monthly Family Update here: https://ahcfmonthlyfamilyupdate.tiiny.site We’re excited to introduce AHCF Monthly...

Introducing the AHC Clinical Reference Guide https://ahcclinicalreferenceguide.tiiny.site/ Last fall, the AHC Foundation was selected to participate in the GCSX...