As I write this greeting, my own daughter is coming out of an AHC episode that has lasted several days. There was only a day-and-a-half between this and the previous multi-day episode. Nearly 12 of the last 14… Read More

AHCF currently funds a grant through MGH/Harvard with Dr Kathryn Swoboda. This Natural History Study is critical for future clinical trials and developing treatments for AHC!EVERY AHC FAMILY is asked to join. http://ahckids.org/naturalhistory/

This story was shared from Brent Munsell, an AHC dad raising awareness on his own through running… and getting his friends in on it too! She accomplished a Personal Record during this event, and we all know it… Read More