2026 Parent University – Vacations and Respite Ideas for the Whole Family
In this exciting session about respite, we will cover: Have you ever thought it is just not possible to have a vacation? Or maybe just some respite? How does that […]
In this exciting session about respite, we will cover: Have you ever thought it is just not possible to have a vacation? Or maybe just some respite? How does that […]
Mary Anne Ehlert of Protected Tomorrows presents: Whatโs So Special about Special Needs Planning. Webinar event: May 20th at 6:00 p.m. Central Time Registration link: https://us02web.zoom.us/webinar/register/WN_r_SXL-kTQ6W02_onrknsEQ Join us for an […]
AHC families and caregivers, Family Circle will be on summer break from June through August, and we look forward to gathering again in September! We. Are. Here. If you're looking […]
Protected Tomorrows Parent University is presenting a free webinar on June 11th. Everyone who has an interest in the Special Needs Community is invited. In this important session about ABLE […]
โWhat We've Learned from the outcome study of 115 Individuals with AHC: Insights for Families and Future Treatments" View Here - https://www.youtube.com/watch?v=k12e9nL-L48&t=228s The Natural History Study of AHC which was […]
Registration is now open for our Caregiverโs Compass, a free virtual course for parents and caregivers of children with complex health care needs. Caregiving often means focusing on everyone elseโs […]
Your Child's AHC Genetic Results: What They Meanโand Why They Matter ๐ Tuesday, July 28 ๐ 7:00 PM EDT https://accountingdepartment.zoom.us/meeting/register/-sVoMJcKSkGgMuvXrLIuAg Many individuals with Alternating Hemiplegia of Childhood (AHC) have a […]
Description - โSchoolโ can mean many things: - If your child is young, what is an IEP? - If your child is older, what can you expect to be available? […]
๐ ๐๐๐ด๐๐๐ ๐ญ๐ฏ๐๐ตย ๐ ๐ณ:๐ฌ๐ฌ ๐ฝ๐บ ๐๐๐ง Register Here - https://tinyurl.com/m7dzhcd4 ๐ช๐ต๐ ๐ถ๐ ๐บ๐ ๐ฐ๐ต๐ถ๐น๐ฑ ๐ฏ๐ฒ๐ต๐ฎ๐๐ถ๐ป๐ด ๐๐ต๐ถ๐ ๐๐ฎ๐? It's a question many AHC parents have asked themselves. Behavior can be […]
The 14th International ATP1A3 Symposium, which brings together researchers, clinicians, families and associations from around the world around rare diseases linked to the ATP1A3 gene , is fast approaching. The […]