Since 2015, evaluating all 50 states plus DC across 9 critical policy areas affecting the 30 million Americans living with rare diseases and their families.
How does your state measure up?
It is important to note the issues contained here in touch on several critical and relevant policy areas at the state level, but the nine issues evaluated within this report card are not exhaustive and there are many others that impact the lives of rare disease patients.
The latest edition of the State Report Card® was compiled using data current as of December 2025. It is a snapshot in time using data from various available sources including state laws, legislative and legal databases, state agency websites, and bill tracking systems. As state policies evolve throughout the year, information may change after publication. We welcome youto submit updates or information that was not available during our research period using the ‘Report A Data Error’ button located below the state map.
NORD hopes the State Report Card® can serve as a tool for patients, advocates, and policymakers as they strive to advocate for state policies to best serve the needs of the rare disease community.
