The AHC Foundation has published an Emergency Room Protocol. This document intends to educate doctors unfamiliar with AHC and your child’s specific medical needs.
Especially in this time of COVID-19 viral infections where your child may need to be admitted for treatment, this document will accompany your child and be passed off to caregivers for their reference.
Vetted by our Medical Advisory Board, this will serve as a diverse and valuable tool for the ER, the school nurse, and other needs.
Drug information insert with the medication Sibelium. Sibelium is the generic pharmaceutical name for Flunarizine.
If you’re the parent of a child with special needs, there are some tax strategies to be aware of that can save your family money. For example, you can deduct the cost of many out-of-pocket expenses on your federal taxes. In this article, you’ll learn about deductions as well as other strategic considerations such as tax credits.
NORD’s MedicAlert assistance program
https://rarediseases.org/wp-content/uploads/2021/02/NRD-2139-Medic-Alert-Assistance_FNL-1.pdf
