RARE Hope, Cure AHC, and the AHC Foundation are proud to announce two groundbreaking wearable studies—developed and supported together—to advance care and research for AHC.
• University of Chicago will study autonomic dysfunction, collecting data on heart rate and other body functions to better understand how AHC impacts these systems.
• Massachusetts General Hospital (MGH) will measure movement patterns in AHC patients.
Together, these studies will generate powerful real-world data that will guide the design of future clinical trials and accelerate the path toward effective therapies. Enrollment will begin soon—stay tuned for details!
