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Two Groundbreaking Wearable Studies for AHC

RARE Hope, Cure AHC, and the AHC Foundation are proud to announce two groundbreaking wearable studies—developed and supported together—to...

September 8, 2025 Kathy Sharo
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Breakthrough Research – Opens Door to Repairing Underlying Genetic Causes

  Scientists use a precise form of gene editing called prime editing to correct the most common genetic mutations...

July 21, 2025 Sharon Ciccodicola
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New Article – Mouse Model for Ultra-Rare Disorders

Check out a new article on the exciting AHC work going on at The Jackson Laboratory. It covers the...

July 10, 2025 Kathy Sharo
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AHC Families Needed for Research Project

Calling AHC parents & guardians! Genetic counseling student, Rae Dwyer -Case Western Reserve University, is conducting research interviews to...

June 4, 2025 Kathy Sharo
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AHC & Status Epilepticus Paper Just Published

Title: Practical management of repeated life-threatening status epilepticus in Alternating Hemiplegia of Childhood: Case report and literature review. Epileptic...

May 22, 2025 Kathy Sharo
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New – D801N & E815K Mouse Info from Jackson Laboratory & AHC Experts

Title: Alternating hemiplegia of childhood associated mutations in Atp1a3 reveal diverse neurological alterations in mice. Neurobiol Dis. 2025 May 15...

May 22, 2025 Kathy Sharo
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New Research Alert: AHC & the Heart

A major international study has just been published, exploring how ATP1A3 variants affect heart function in people with AHC....

May 9, 2025 Kathy Sharo
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Wear Your Support for a Cure – AHC Store is Live

Big news: our online store is LIVE — and it’s packed with bold designs and powerful messages for the...

April 30, 2025 Kathy Sharo