Educational tutorials, advocates, and future planning

Educational tutorials, advocates, and future planning

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NORD’s MedicAlert assistance program
https://rarediseases.org/wp-content/uploads/2021/02/NRD-2139-Medic-Alert-Assistance_FNL-1.pdf

Wearable medical ID’s
https://store.medicalert.org/medical-id

Seizure first aid training
https://learn.epilepsy.com/

Gait trainers
https://www.adaptivemall.com/seemore/gaittrainers1.html?product_list_limit

Functional Formularies organic whole foods plant-based formulas

Real Food & Nutritional Variety for People with Feeding Tubes

Patient advocacy organization dedicated to individuals with rare diseases.
NORD

Real food blends

Real Food & Nutritional Variety for People with Feeding Tubes

Public policy, advocacy, and resource group.
ARC

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The Charlie Foundation for ketogenic therapies

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