Foundation Updates
AHCF is Blogging!
Welcome to our new Blog. Lynn Egan will be blogging about things that affect AHC families and would love to hear your comments and ideas! The more dialog the better!! Check the blog often and join the conversation! http://ahckids.org/welcome-to-ahc-365/
Family Update Newsletter
One of my favorite things to do for the foundation is to meet with AHC families at the AHCF Family Meeting. It is an incredible opportunity to catch up with old friends and meet new ones, hear from researchers, chat with doctors, and learn from everyone attending the meeting. Read more in our latest newsletter
AHCF Workshop Announced
The Alternating Hemiplegia of Childhood Foundation (AHCF) is proud to sponsor the scientific workshop titled “Achieving Consensus on Definitions and Outcomes for Natural History Studies and Clinical Trials in ATP1A3 Related Disorders.” Co-chaired by Dr Kathryn Swoboda and Dr Allison Brashear, the full day workshop will take place concurrent with the AHCF Family Meeting on June 27th in Minneapolis, MN. (more…)
Family Meeting Update
The Family Meeting is fast approaching and we wanted to update you on some of the plans and also provide you with some things to consider. Thank you to those who have already signed up and a reminder for everyone who is still planning on coming….. (more…)
Fundraisers
Shop for AHC!
SHOP for a CAUSE Card!
Calling ALL AHCF Families & Friends Who Live Near a Macy’s Store
WE NEED YOUR HELP! Macy’s has created a wonderful fundraiser to help the AHCF raise money!
BeneFEST to benefit AHCF!
Check out theAHCF table at the BeneFEST and get a free wristband from AHCF!
If you live in or around Sturbridge, MA, come out and enjoy a day of music and fun!! This is a one day family friendly music festival to raise funds for the research of alternating hemiplegia of childhood. The event will take place at the beautiful Hyland Orchard & Brewery on July 19, 2014. Thank you to Paula Couture-Palmerino and family!!
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Renegades for Lisa Marie and AHC!
Love baseball? Mark your calendar to see the Hudson Valley Renegades on Tuesday July 22nd at Dutchess Stadium for a 7:05 Game Time or Sunday August 10th at Duchess Stadium for a 7:05 Game Time and maybe get a hug from Rascal too!
3rd Annual Sharo Golf Outing
The 3rd annual Sharo Golf outing to benefit AHCF and in honor of granddaughter Kiley Andrasco will be held August 1st at the Deer Creek Golf Course in University Park Ill.
2nd Annual “One in a Million” Golf Scramble
“One In a Million” Golf Scramble
Join the Greenwoods on AUGUST 3rd, 2014 (REGISTRATION AT 7:00AM) at Binder Park Golf Course in Battle Creek MI for a great day of Golf, Raffles, Prizes, Food and Fun!!
