• August Newsletter

    AHC Kids back to school, Webinar coming at the end of August, Birthday club coming in September, AHC Documentary gets another Award!, 2018 Family Meeting information, Research published recently, Voice of AHC campaign is rolling, and a reminder… Read More

The Foundation

Our mission is to find the cause(s) of AHC, develop effective treatments and ultimately find a cure, while providing support to the families and children with AHC by funding research to accomplish these goals.

Through research, education and family support, we have

ONE MISSION: END AHC

Secondarily, we strive to promote proper diagnosis, educate health care professionals, the public and related organizations, encourage the worldwide exchange of information and advance the development of an international database of all AHC patients. Learn More

August Newsletter

AHC Kids back to school, Webinar coming at the end of August, Birthday club coming in September, AHC Documentary gets another Award!, 2018 Family Meeting information, Research published recently, Voice of AHC campaign is rolling, and a reminder… Read More

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July Newsletter

The Board of Directors has had a strategic planning session, the Foundation has funded three projects, the next Webinar has been scheduled, the foundation developed a Family Grant program, published research is summarized, and the Medical Advisory Board answers… Read More

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May Newsletter

Memorial Day is this weekend, and we have lots for you to read! Five article published, Mouse Model making news, AHCF Medical Advisory Board publishes a paper, AHCF hosted a “Call to Action” webinar regarding the threatened NIH… Read More

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In the News: Emilia interview

On February 15 the New Jersey Fox 29 station published an interview with Emilia Schalick and her family.  A great interview that will certainly result in greater awareness of our rare disease.  Thank you for putting yourselves out there for… Read More

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Impact Statement 2016 Published

We are proud to issue our inaugural impact statement. It is published in our website here.  Read, Share, Enjoy!

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Mission Video

The foundation has created this video explaining our mission beyond the words we use in our Bylaws, Foundation descriptions, and any other written word.  The spoken word and images from this video bring the richness, and bravery of… Read More

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