Alternating Hemiplegia of Childhood Foundation
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CRISPR Research Funded
The AHC Foundation is delighted to announce a partnership with Dr. David Liu’s laboratory at the Broad Institute and Harvard University to investigate gene editing as a potential therapy for AHC. The work of Dr. Liu and his… Read More
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Medications: Do No Harm
The second collaborative webinar is set for January 16th 1pm eastern! “Medication: Do No Harm” will be a panel style discussion of medications applied to AHC. The moderated format of the presentation will present questions submitted by the… Read More
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Giving Beyond Tuesday
Giving this Tuesday makes an impact on AHC kids and families far beyond one day. Help us by Giving Beyond Tuesday. #AHCkids #AHSTRONG #ENDAHC
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Happy Thanksgiving
As the Thanksgiving holiday is ought to do, we find ourselves contemplating what we give thanks for this year. I am only in my second year at the helm of this foundation, and I find myself thankful for… Read More
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Research Funded
On behalf of the Alternating Hemiplegia of Childhood Foundation (AHCF) we are pleased to announce an award of $173,419.00 to the Department of Pharmacology, Northwestern University, Feinberg School of Medicine for the project “Exploring Mechanisms and the Therapeutic… Read More
AAV Project
With funds raised from the AHC Foundation, we hope to develop a cure for all of our AHC families suffering from AHC. We believe a path has been identified to a viable permanent treatment: gene therapy. Gene Therapy… Read More
Community
The AHC Foundation is committed to being the foremost source of information and support for the AHC Community. With the various channels we use to connect with our families, and help families connect with each other, the AHCF has… Read More
The Foundation
Our mission is to find the cause(s) of AHC, develop effective treatments and ultimately find a cure, while providing support to the families and children with AHC by funding research to accomplish these goals. Through research, education and… Read More
Who is AHC?
Join us by reviewing specific stories of our children and their families in their Honorarium pages. Stories typically chronicle the arduous journey from strange symptoms through the relief and pain of diagnosis, as well as the adaptation of families to a life with AHC. In addition to the fellowship created through sharing, the families put a personal touch to their fund raising efforts through these Honorariums.
Donate in honor of a specific child through their respective pages linked below.
In Memorial:
The Foundation encourages all families to create an Honorarium to add to the expanding picture of the AHC experience. Put a face on the condition by sending us your story in a text document with images in separate files. We will format the text and images into an Honorarium similar to these. Contact Joshua Marszalek via email: joshua@ahckids.org
- CRISPR Research Funded
- Medications: Do No...
- Year end message...
- Giving Beyond Tuesday
- Happy Thanksgiving
- Research Funded
- 2020 Great Non...
- New Honorarium!
- Happy Birthday Violet!
- Happy Birthday Kathleen!
CRISPR Research Funded
The AHC Foundation is delighted to announce a partnership with Dr. David Liu’s laboratory at the Broad Institute and Harvard University to investigate gene editing as a potential therapy for AHC. The work of Dr. Liu and his… Read More
Medications: Do No Harm
The second collaborative webinar is set for January 16th 1pm eastern! “Medication: Do No Harm” will be a panel style discussion of medications applied to AHC. The moderated format of the presentation will present questions submitted by the… Read More
Year end message from AHCF
As I write this greeting, my own daughter is coming out of an AHC episode that has lasted several days. There was only a day-and-a-half between this and the previous multi-day episode. Nearly 12 of the last 14… Read More
Giving Beyond Tuesday
Giving this Tuesday makes an impact on AHC kids and families far beyond one day. Help us by Giving Beyond Tuesday. #AHCkids #AHSTRONG #ENDAHC
Happy Thanksgiving
As the Thanksgiving holiday is ought to do, we find ourselves contemplating what we give thanks for this year. I am only in my second year at the helm of this foundation, and I find myself thankful for… Read More
Research Funded
On behalf of the Alternating Hemiplegia of Childhood Foundation (AHCF) we are pleased to announce an award of $173,419.00 to the Department of Pharmacology, Northwestern University, Feinberg School of Medicine for the project “Exploring Mechanisms and the Therapeutic… Read More
2020 Great Non Profits Badge
The AHCF has earned its 2020 Great Non-Profits badge! Thanks to the volunteers and families for helping us with your nominations! The GreatNonprofits Top-Rated Awards is the one and only people’s choice award where volunteers, donors, and people… Read More
New Honorarium!
Check out a new story of an old family! Our latest addition to the WHO IS AHC section of our site is Kiley Andrasco, a 19 year-old AHC patient and daughter. Thank you for sharing this story! http://ahckids.org/kileyandrasco/… Read More
Happy Birthday Violet!
We get a double helping of Birthday Wishes in the AHC community today! Happy birthday Violet! May your day be strong and happy.
Happy Birthday Kathleen!
Big Happy Birthday wishes going out to San Francisco are to Kathleen Egan! Hoping for a strong day for you and your family! What a great day to race!
