Alternating Hemiplegia of Childhood Foundation
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June Newsletter
AHCF elects new leadership, Lyn Egan says “thank you” but not goodbye, Carol Presunka steps down from the board, AAV Project update, AHCF Family meeting set for L.A., Dr. Anderman passes away, AHCF fundraisers announced, Another matching grant… Read More
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25k Matching Grant Sequel
The Blockbuster Summer Sequel is here! We have another opportunity to double our donations this summer! Thanks to the Wedum Family Foundation, we will have all donations from June 1 thru August 31 matched. Up to $25,000! These… Read More
AAV Project
With funds raised from the AHC Foundation, we hope to develop a cure for all of our AHC families suffering from AHC. We believe a path has been identified to a viable permanent treatment: gene therapy. Gene Therapy… Read More
Fundraising
Volunteers and private donations are the source of all the funds raised for any research into Alternating Hemiplegia of Childhood; from any organization. The AHCF has had great success supporting individuals and families to raise funds on behalf… Read More
Community
The AHC Foundation is committed to being the foremost source of information and support for the AHC Community. With the various channels we use to connect with our families, and help families connect with each other, the AHCF has… Read More
The Foundation
Our mission is to find the cause(s) of AHC, develop effective treatments and ultimately find a cure, while providing support to the families and children with AHC by funding research to accomplish these goals.
Through research, education and family support, we have
ONE MISSION: END AHC
Secondarily, we strive to promote proper diagnosis, educate health care professionals, the public and related organizations, encourage the worldwide exchange of information and advance the development of an international database of all AHC patients. Learn More
- June Newsletter
- 25k Matching Grant...
- Challenge Busted!
- 50K Matching Grant...
- March Newsletter
- AAV Project Update
- February Newsletter
- January Newsletter
- 2019 Quilt Raffle...
- December Newsletter
- November Newsletter
- AAV Webinar Posted
June Newsletter
AHCF elects new leadership, Lyn Egan says “thank you” but not goodbye, Carol Presunka steps down from the board, AAV Project update, AHCF Family meeting set for L.A., Dr. Anderman passes away, AHCF fundraisers announced, Another matching grant… Read More
25k Matching Grant Sequel
The Blockbuster Summer Sequel is here! We have another opportunity to double our donations this summer! Thanks to the Wedum Family Foundation, we will have all donations from June 1 thru August 31 matched. Up to $25,000! These… Read More
Challenge Busted!
WOW! YOU DID IT! A challenge was made, and the community met it… AGAIN! We are overwhelmed to announce that the AHC community raised $59,196 in response to an April matching grant challenge! All donations in April will… Read More
50K Matching Grant Challenge
Download and print this PDF to distribute in your neighborhood Click here to download PDF Create your own AHCF fundraising page here: https://ahckids.z2systems.com/np/clients/ahckids/createFundraiser.jsp?campaignId=6&teamId=null Learn more about the AAV Gene Therapy Project here
March Newsletter
AAV Project update, Minnesota family crushes fundraising effort, Japanese researchers connects ATP1A3 and Epilepsy, New condition identified related to AHC, and news about International foundations join AAV Project are all in this month’s newsletter from the AHC Foundation…. Read More
AAV Project Update
March 5, 2019 – Joint message from Cure AHC, AHC Foundation and Hope for Annabel: To pick an analogy for this second AAV Project update, we would say that it is like preparing for space travel. We have… Read More
February Newsletter
Largest fundraising effort ever is gaining momentum, Indiana doubles down on AHC, Valentine Exchange happens, Rare Disease Day Coming, Research published, and AAV project explained in this month’s newsletter. Read. Share. Advocate. http://ahckids.org/wp-content/uploads/2019/02/Newsletter_201902_February.pdf
January Newsletter
The AAV Project is in Phase One and fundraising continues, Research Projects were authorized by the board, Webinar hosted and will be published on our YouTUBE channel soon, The AHC Bibliography has been updated through December 2018, the… Read More
2019 Quilt Raffle Open
The Raffle will be drawn February 2nd, 2019 at 7pm during the Warriors for Kathryn event in Connersville, Indiana. Click here to order tickets! Ticket Information: Online Raffle Ticket Sales will close at 3pm Eastern Time on day of drawing…. Read More
December Newsletter
Gene Therapy project is in fundraising phase and we need help, Dr. George wraps up the 7th Symposium of ATP1A3 in Disease held in October. Read. Share. Enjoy. http://ahckids.org/wp-content/uploads/2018/12/Newsletter_201812_December.pdf
November Newsletter
The fundraiser to end all fundraiser has started, the 7th research symposium for ATP1A3 in Disease happened, and research continues in this edition of the AHCF newsletter. Read. Share. Advocate http://ahckids.org/wp-content/uploads/2018/12/Newsletter_201811_November.pdf
AAV Webinar Posted
The AAV Gene Therapy Webinar has been posted to our site. In case you missed the broadcast this past Thursday, we have posted the webinar for your viewing pleasure. Please view it, and learn about the great potential… Read More
