Alternating Hemiplegia of Childhood Foundation
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Online Registration Open
Registration for the Live Streaming of the Family Meeting Presentations is Open! Unable to join us in person? We will be hosting a free multi-language Zoom so everyone in the AHC community can be part of the meeting…. Read More
AAV Project
With funds raised from the AHC Foundation, we hope to develop a cure for all of our AHC families suffering from AHC. We believe a path has been identified to a viable permanent treatment: gene therapy. Gene therapy provides a path to a cure for AHC. A similar approach has already been successful in many diseases.
Rare-X Data Collection
The AHC community is partnering with RARE-X, a 501(c)(3) nonprofit organization, to build a Data Collection Program for AHC families. When you participate in the AHC Data Collection Program, you’ll help accelerate research and the development of new drugs, devices, and other therapies.
Family Meeting 2023
Join us in beautiful Los Angeles, Glendale California this summer for the 14th AHCF Family Meeting. We are looking forward to meeting once again in person! Friday June 23rd, Saturday June 24th, and ½ day Sunday June 25th… Read More
The Foundation
Our mission is to find the cause(s) of AHC, develop effective treatments and ultimately find a cure, while providing support to the families and children with AHC by funding research to accomplish these goals.Secondarily, we strive to promote proper diagnosis, educate health care professionals, the public and related organizations, encourage the worldwide exchange of information and advance the development of an international database of all AHC patients. Learn MoreThrough research, education and family support, we have
ONE MISSION: END AHC
- Online Registration Open
- Store Open
- 2023 Family Meeting...
- Race for hope
- New Race Gear
- Let’s Party
- We need you!
- RACE to END...
- Research Update
- Rare-X Data Collection
Online Registration Open
Registration for the Live Streaming of the Family Meeting Presentations is Open! Unable to join us in person? We will be hosting a free multi-language Zoom so everyone in the AHC community can be part of the meeting…. Read More
Store Open
Time to stock up on AHCF gear featuring our fresh new brand! Order now through May 15 and get in time to wear to the AHCF Family Meeting in June! There are so many different options and designs…. Read More
2023 Family Meeting Registration
The time is finally here for Family Meeting 2023. REGISTRATION OPENS MONDAY! We are thrilled to see you in person June 23-25, 2023 at the Embassy Suites in sunny Los Angeles Glendale, California. Leading researchers and doctors in… Read More
Race for hope
There are 6,000+ rare diseases. AHC was first noted in the 1970s; described as an unusual disorder in eight children who demonstrated intermittent episodes of weakness, affecting first one side of the body, then the other, with onset… Read More
New Race Gear
The Race to End AHC looks different this year, and so does our gear! Visit the store to check out this year’s new t-shirt look and stock up on some classics like bandanas, car magnets, and the fan… Read More
Let’s Party
The last two years we’ve had incredible race day parties all over the world. We still want to celebrate again together this year, just at the finish line instead! Gather your family and friends to celebrate your accomplishment… Read More
We need you!
The AHC community has a remarkable network of strong families and friends that work hard to raise money every year for research and family support. The best way to support these AHC families is by encouraging family and… Read More
RACE to END AHC
Registration is now open for our 3rd Annual Race to End AHC and it’s going to be our most exciting year yet! This year we’re connecting racers better than ever by using a digital race platform, My Virtual… Read More
Research Update
2021 saw advances in a number of projects sponsored by the AHC organizations. Here is an update of where we are today in each of them: 1. The AAV Project: AAV-Mediated Gene Therapy We are continuing to assess… Read More
Rare-X Data Collection
The AHC Foundation with Hope for Annabel and CureAHC are collaborating with RARE-X to build a data collection program for AHC families. Click here to learn more about this patient owned data hub that can connect all the… Read More
