Foundation Updates

Hello AHC Families and Friends,

We need your help to get your Neurologist and other health care professionals in your child’s life to consider coming to our CME meeting, taking place just before the Family Meeting June 28th and 29th.

Please distribute the attached Registration letter to anyone in the medical community you think may benefit or be interested in learning about AHC .  CMEregistrationletterhead2 (more…)

AHCF is pleased to announce our first annual CME Scientific Conference to be held on June 28 and 29, 2012 in beautiful San Francisco California. The main focus of this conference is to educate the medical community about Alternating Hemiplegia of Childhood  (AHC) and is open to any discipline of the Medical Community. 12 CME credit hours will be awarded to Physicians.

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Save these Dates for our Family Meeting in San Francisco, California. More details coming soon!

Fundraisers

Cindy and Dave Ryan held their annual Fundraiser Crazy for a Cure on Saturday February 11th and raised over $7500.00! (more…)

We need your help to sell tickets! AHCF is sponsoring a sports fundraiser by Charity Mania called Hoops Mania. Mollie Erpenbeck is the contact person and can send you tickets to sell or you can get your family and friends to purchase tickets online @  https://www.charitymania.com/give/L2001  (more…)

AHCF President's Corner Awareness Events Blog

Dear AHC Families & Friends,

Can you feel the excitement building?  IT IS!   We are on the verge of making HISTORY!   Our 1 in a Million Campaign will be a success thanks to YOU!.  We have materials for you to use (flyers, business card sized info cards, email templates, a 30 second Video PSA, & story points for you to approach media in your local area.  We’ll have pre made Twwets & Facebook posts (and how & when to use them)   The key is to take action & use them   We’ll have them posted by the weekend.  There is a how to video to go with it, and support from me &, the Fundraising Committee, and the Board.   All we need to do is more of what we did during the Pepsi Refresh, in a more focused and organized fashion, and we will succeed. THAT IS WHAT WE HAVE WORKED HARD TO PLAN TO DO!

Check out www.ahc2012.org & let me know what you think!   2012 is going to be the year for some answers for AHC, and we need to be ready to capitalize on new findings.  Your efforts will truly make a difference!   Thanks in advance for helping out & I look forward to working with you!

Yours in Service,

Jeff

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