Alternating Hemiplegia of Childhood Foundation
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2021 Quilt Raffle Open
The 2021 Warriors for Kathryn Quilt Raffle is open! This year’s quilt is a twin of that presented to the Poarch Creek Indians in appreciation of their generous matching grant in 2020. Both quilts created by AHC grandparent… Read More
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Rare will be the new king
Rarity in our world is often a very good thing. All of the most valuable things in our world are so because they are rare. The less of most any one thing, the more desired it is, and… Read More
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CRISPR Research Funded
The AHC Foundation is delighted to announce a partnership with Dr. David Liu’s laboratory at the Broad Institute and Harvard University to investigate gene editing as a potential therapy for AHC. The work of Dr. Liu and his… Read More
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Research Funded
On behalf of the Alternating Hemiplegia of Childhood Foundation (AHCF) we are pleased to announce an award of $173,419.00 to the Department of Pharmacology, Northwestern University, Feinberg School of Medicine for the project “Exploring Mechanisms and the Therapeutic… Read More
AAV Project
With funds raised from the AHC Foundation, we hope to develop a cure for all of our AHC families suffering from AHC. We believe a path has been identified to a viable permanent treatment: gene therapy. Gene Therapy… Read More
Community
The AHC Foundation is committed to being the foremost source of information and support for the AHC Community. With the various channels we use to connect with our families, and help families connect with each other, the AHCF has… Read More
Who is AHC?
Join us by reviewing specific stories of our children and their families in their Honorarium pages. Stories typically chronicle the arduous journey from strange symptoms through the relief and pain of diagnosis, as well as the adaptation of families… Read More
The Foundation
Our mission is to find the cause(s) of AHC, develop effective treatments and ultimately find a cure, while providing support to the families and children with AHC by funding research to accomplish these goals.Secondarily, we strive to promote proper diagnosis, educate health care professionals, the public and related organizations, encourage the worldwide exchange of information and advance the development of an international database of all AHC patients. Learn MoreThrough research, education and family support, we have
ONE MISSION: END AHC
- 2021 Quilt Raffle...
- Rare will be...
- CRISPR Research Funded
- Medications: Do No...
- Year end message...
- Giving Beyond Tuesday
- Happy Thanksgiving
- Research Funded
- 2020 Great Non...
- New Honorarium!
2021 Quilt Raffle Open
The 2021 Warriors for Kathryn Quilt Raffle is open! This year’s quilt is a twin of that presented to the Poarch Creek Indians in appreciation of their generous matching grant in 2020. Both quilts created by AHC grandparent… Read More
Rare will be the new king
Rarity in our world is often a very good thing. All of the most valuable things in our world are so because they are rare. The less of most any one thing, the more desired it is, and… Read More
CRISPR Research Funded
The AHC Foundation is delighted to announce a partnership with Dr. David Liu’s laboratory at the Broad Institute and Harvard University to investigate gene editing as a potential therapy for AHC. The work of Dr. Liu and his… Read More
Medications: Do No Harm
The second collaborative webinar is set for January 16th 1pm eastern! “Medication: Do No Harm” will be a panel style discussion of medications applied to AHC. The moderated format of the presentation will present questions submitted by the… Read More
Year end message from AHCF
As I write this greeting, my own daughter is coming out of an AHC episode that has lasted several days. There was only a day-and-a-half between this and the previous multi-day episode. Nearly 12 of the last 14… Read More
Giving Beyond Tuesday
Giving this Tuesday makes an impact on AHC kids and families far beyond one day. Help us by Giving Beyond Tuesday. #AHCkids #AHSTRONG #ENDAHC
Happy Thanksgiving
As the Thanksgiving holiday is ought to do, we find ourselves contemplating what we give thanks for this year. I am only in my second year at the helm of this foundation, and I find myself thankful for… Read More
Research Funded
On behalf of the Alternating Hemiplegia of Childhood Foundation (AHCF) we are pleased to announce an award of $173,419.00 to the Department of Pharmacology, Northwestern University, Feinberg School of Medicine for the project “Exploring Mechanisms and the Therapeutic… Read More
2020 Great Non Profits Badge
The AHCF has earned its 2020 Great Non-Profits badge! Thanks to the volunteers and families for helping us with your nominations! The GreatNonprofits Top-Rated Awards is the one and only people’s choice award where volunteers, donors, and people… Read More
New Honorarium!
Check out a new story of an old family! Our latest addition to the WHO IS AHC section of our site is Kiley Andrasco, a 19 year-old AHC patient and daughter. Thank you for sharing this story! http://ahckids.org/kileyandrasco/… Read More
