Alternating Hemiplegia of Childhood Foundation
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Happy Birthday Violet!
We get a double helping of Birthday Wishes in the AHC community today! Happy birthday Violet! May your day be strong and happy.
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Happy Birthday Kathleen!
Big Happy Birthday wishes going out to San Francisco are to Kathleen Egan! Hoping for a strong day for you and your family! What a great day to race!
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New Directors!
AHC Foundation is proud to introduce our two most recent additions to our Board of Directors! We are looking forward to the contributions these two will make and the enthusiasm they will add to our outstanding board. Katelyn… Read More
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AHC Foundation works!
A primary focus of AHCF’s mission is to fund research to find treatments and a cure for AHC. Since the first grant award in 1995, AHCF has funded $3,168,892.00 in research thanks to the help and generosity of… Read More
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Race for Landry
“We are living our worst fear. Most people’s worst fear – that something terrible would happen to your child. That you would have to watch helplessly as they suffer. That their life would be hard and filled with… Read More
AAV Project
With funds raised from the AHC Foundation, we hope to develop a cure for all of our AHC families suffering from AHC. We believe a path has been identified to a viable permanent treatment: gene therapy. Gene Therapy… Read More
RACE TO END AHC
Join us October 4, 2020 for the inaugural AHC Foundation Race to End AHC: One Million Steps to a Cure. A virtual event to spread awareness for AHC and raise funds for research, education, and community support to… Read More
Community
The AHC Foundation is committed to being the foremost source of information and support for the AHC Community. With the various channels we use to connect with our families, and help families connect with each other, the AHCF has… Read More
Who is AHC?
Join us by reviewing specific stories of our children and their families in their Honorarium pages. Stories typically chronicle the arduous journey from strange symptoms through the relief and pain of diagnosis, as well as the adaptation of families to a life with AHC. In addition to the fellowship created through sharing, the families put a personal touch to their fund raising efforts through these Honorariums.
Donate in honor of a specific child through their respective pages linked below.
In Memorial:
The Foundation encourages all families to create an Honorarium to add to the expanding picture of the AHC experience. Put a face on the condition by sending us your story in a text document with images in separate files. We will format the text and images into an Honorarium similar to these. Contact Joshua Marszalek via email: joshua@ahckids.org
- Happy Birthday Violet!
- Happy Birthday Kathleen!
- New Directors!
- AHC Foundation works!
- Race for Landry
- Join a fundraising...
- Get your racing...
- Race for Violet
- AAV Project Update
- Call to Action...
- May Newsletter
- ER Protocol Published
Happy Birthday Violet!
We get a double helping of Birthday Wishes in the AHC community today! Happy birthday Violet! May your day be strong and happy.
Happy Birthday Kathleen!
Big Happy Birthday wishes going out to San Francisco are to Kathleen Egan! Hoping for a strong day for you and your family! What a great day to race!
New Directors!
AHC Foundation is proud to introduce our two most recent additions to our Board of Directors! We are looking forward to the contributions these two will make and the enthusiasm they will add to our outstanding board. Katelyn… Read More
AHC Foundation works!
A primary focus of AHCF’s mission is to fund research to find treatments and a cure for AHC. Since the first grant award in 1995, AHCF has funded $3,168,892.00 in research thanks to the help and generosity of… Read More
Race for Landry
“We are living our worst fear. Most people’s worst fear – that something terrible would happen to your child. That you would have to watch helplessly as they suffer. That their life would be hard and filled with… Read More
Join a fundraising team
We know that life looks a little different right now and that a lot of you are experiencing new challenges in the face of COVID-19. If you think you can raise money to help END AHC, then please… Read More
Get your racing gear!
Let everyone know that you are passionate about joining the Race to END AHC by purchasing race gear! Order now to get your gear in time for race day! https://ahckids.z2systems.com/np/clients/ahckids/giftstore.jspProceeds from race merchandise directly fund critical research and… Read More
Race for Violet
“When my daughter, Violet, was diagnosed with AHC, I had no idea what that really meant for her. Everything I read about it was terrible and uncertain, but there were so many variables that were not yet realized… Read More
AAV Project Update
A Blessing in Disguise –AAV Project Update August 2020 The AAV project continues to move forward and we have both progress—and some unexpected developments to report. A Refresh – What is the AAV Project? The AAV Project originated… Read More
Call to Action Natural History Database
AHCF currently funds a grant through MGH/Harvard with Dr Kathryn Swoboda. This Natural History Study is critical for future clinical trials and developing treatments for AHC!EVERY AHC FAMILY is asked to join. http://ahckids.org/naturalhistory/
May Newsletter
Our May Newsletter begins with a message from our President, describes a new tool for patients, introduces our latest edition to the board of directors, announces our bibliography update, and shares some of the latest published research in… Read More
ER Protocol Published
The AHC Foundation has published an Emergency Room Protocol. The intent of this document is to educate doctors unfamiliar with AHC and with your child’s specific medical needs.Especially in this time of COVID-19 viral infections where your child… Read More
