Registration is open for the 2021 family meeting! Join us virtually as we Zoom to END AHC on June 26 and 27. Register and learn more here: http://ahckids.org/zoom2021/#endAHC#zoom#familymeeting2021
With funds raised from the AHC Foundation, we hope to develop a cure for all of our AHC families suffering from AHC. We believe a path has been identified to a viable permanent treatment: gene therapy. Gene therapy provides a path to a cure for AHC. A similar approach has already been successful in many diseases.
The AHC community is partnering with RARE-X, a 501(c)(3) nonprofit organization, to build a Data Collection Program for AHC families. When you participate in the AHC Data Collection Program, you’ll help accelerate research and the development of new drugs, devices, and other therapies.
AHCF is pleased to present our 12th “Family Meeting”! You are invited to join us on Saturday June 26th and Sunday June 27th as we come together virtually to learn about the latest Research, Living with AHC, Behavior issues, Special needs Financial planning, “Ask the Doctor” and “Experienced Parents” panels!