Alternating Hemiplegia of Childhood Foundation
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December Newsletter
Gene Therapy project is in fundraising phase and we need help, Dr. George wraps up the 7th Symposium of ATP1A3 in Disease held in October. Read. Share. Enjoy. http://ahckids.org/wp-content/uploads/2018/12/Newsletter_201812_December.pdf
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Year End Campaign 2018
AHCF’s Year-End Campaign to Fund Gene Therapy Research Innovative AAV Project Aims to Treat Alternating Hemiplegia of Childhood The AHC Foundation is excited to announce the beginning of our year-end campaign called, Step Up 4 AHC. One focus… Read More
Community
The AHC Foundation is committed to being the foremost source of information and support for the AHC Community. With the various channels we use to connect with our families, and help families connect with each other, the AHCF has… Read More
Fundraising
Volunteers and private donations are the source of all the funds raised for any research into Alternating Hemiplegia of Childhood; from any organization. The AHCF has had great success supporting individuals and families to raise funds on behalf… Read More
Impact Statement 2017
The AHC Foundation has garnered enormous support financially, as well as through the time and talents of volunteers applied toward our mission to support families, educate the community, and advance research. The AHCF understands that good stewardship of… Read More
The Foundation
Our mission is to find the cause(s) of AHC, develop effective treatments and ultimately find a cure, while providing support to the families and children with AHC by funding research to accomplish these goals.
Through research, education and family support, we have
ONE MISSION: END AHC
Secondarily, we strive to promote proper diagnosis, educate health care professionals, the public and related organizations, encourage the worldwide exchange of information and advance the development of an international database of all AHC patients. Learn More
- December Newsletter
- November Newsletter
- AAV Webinar Posted
- Year End Campaign...
- September Newsletter
- July Newsletter
- June Newsletter
- New York Jets...
- April Newsletter
- March Newsletter
- January Newsletter
- International AHC day...
December Newsletter
Gene Therapy project is in fundraising phase and we need help, Dr. George wraps up the 7th Symposium of ATP1A3 in Disease held in October. Read. Share. Enjoy. http://ahckids.org/wp-content/uploads/2018/12/Newsletter_201812_December.pdf
November Newsletter
The fundraiser to end all fundraiser has started, the 7th research symposium for ATP1A3 in Disease happened, and research continues in this edition of the AHCF newsletter. Read. Share. Advocate http://ahckids.org/wp-content/uploads/2018/12/Newsletter_201811_November.pdf
AAV Webinar Posted
The AAV Gene Therapy Webinar has been posted to our site. In case you missed the broadcast this past Thursday, we have posted the webinar for your viewing pleasure. Please view it, and learn about the great potential… Read More
Year End Campaign 2018
AHCF’s Year-End Campaign to Fund Gene Therapy Research Innovative AAV Project Aims to Treat Alternating Hemiplegia of Childhood The AHC Foundation is excited to announce the beginning of our year-end campaign called, Step Up 4 AHC. One focus… Read More
September Newsletter
Message from Lynn, Silver co-authors research article, Research grant funded by AHCF, International research symposium coming to Chicago in October, AHC bibliography updated on website, AHCF has new fundraising platform, 13th annual Chicago Walk happened, and our LARGEST… Read More
July Newsletter
New Jersey Meeting was a success! Sibling session at the meeting had an impact, collaboration in the AHC organization community is coming together, AHC yearbook by the AHC community is coming, Dr. Kearney does grand rounds, FDA approves… Read More
June Newsletter
Join us for the Family Meeting in New Jersey this month! If you are not making it this year, join the live streaming of presentations! NFL Fundraiser going on, New England walk was a success, Dr. Silver speaks… Read More
New York Jets Football Tickets
The AHC Foundation is benefiting from a family’s interest in raising funds in this creative way! Paul Hodes is selling tickets for New York Jets football games. Two games for the price of one! Please see the link… Read More
April Newsletter
The 12th AHCF Family Meeting registration is open and planning has been full throttle, Major AHC Research has been published!, traveling tips, ATP1A2 research published, and AHCF family grants available. Read about it all in our monthly Newsletter. … Read More
March Newsletter
Read a Spring message from Lynn. Make your plans for the Family Meeting in New Jersey this June. Family Meeting Registration to open soon. Connersville, Indiana comes out big for AHC. Webinar series published on AHCkids website (including… Read More
January Newsletter
A Happy New Year wish, International AHC Day Webinar, calendar is filling up, ATP1A3 related research update, AHCF Family meeting planning in full swing, and a tip about improving your kid’s quality of life are in this month’s… Read More
International AHC day webinar – AHC & Behavior management
AHCF has invited you to participate in International AHC Day (January 18th) by joining our webinar on Behavior@ 7:30 PM EST. Topic: “Coping with Behavior of those affected with AHC.” Alice Belgrade MSEd., LCPC, BCBA, our guest speaker… Read More
