Foundation Updates
AHCF Pepsi Grant Research Update
Dear Families,
The Board of the Alternating Hemiplegia of Childhood Foundation (The Foundation) would like to share with you an update about the research we funded through the Pepsi Refresh Grant.
After The Foundation won the Pepsi Refresh Challenge, we funded research which focused on genetic sequencing of AHC patient blood samples. Through this grant, researchers were tasked on identifying possible genetic mutations that were responsible for causing AHC. As this research continues to proceed through the many stages of scientific discovery, the cause(s) of AHC seems to be close at hand. (more…)
2012 AHCF Family Meeting
Dear AHC Families and Friends,
The Alternating Hemiplegia of Childhood Foundation Family Meeting will be held on Friday, June 29th, Saturday, June 30th and Sunday, July 1st, 2012 in beautiful San Francisco, California. This year we are asking all families and friends to register so we can have an accurate count and enough materials for everyone. We will be having clinic, genetic counseling and behavior appointments starting on Wednesday 27th and Thursday June 28th.
The Family Meeting will kick off with an AHCF sponsored luncheon at noon on Friday June 29th with all of the registered Physicians and AHC families and friends invited. (more…)
AHC Families Please Join the AHCF Facebook Page
All the families that are on Facebook now please join us on the AHCF Facebook page @ https://www.facebook.com/AHCKids?v=page_getting_started (more…)
Fundraisers
Kickin It For Koryn – May 27
Just a donation at the door includes food and entertainment. There will be raffles and a silent auction. All proceeds go to the AHC Foundation. Make a difference today!
May 27, 2012 Hummelstown Fire Hall, Hummelstown PA. From 2pm – 6pm (more…)
Pizza Fundraising Idea – Hungry?
Olga and Bill Gerber have come up with a fun and easy idea to honor their son Sean’s birthday. In June, Sean’s birthday month, their local Pizza Parlor will donate 15% of all dining or carry out checks on Wednesdays and Thursdays to AHCF! (more…)
Fundraising with the Renegades!
The Hudson Valley Renegades will be hosting a fundraiser in support of Lisa Hodes and her fight against AHC on July 12, July 18 and July 26. Come on out and enjoy a fun Baseball game, get a Renegades hat and raise money for AHCF too! (more…)
Chicago Area Golf Outing for AHCF
Terry Sharo is sponsoring a Golf Outing to Benefit Alternating Hemiplegia of Childhood Foundation in honor of his grandaughter Kiley Andrasco on August 3, 2012.
Golf Outing Details: Register by June 3, 2012. The outing will be held at beautiful Deer Creek Golf Course, located in University Park, Illinois, a southern suburb of Chicago. (more…)
Blog
AHC Families please join “Rare Connect” the new name for “Rare Disease Communities”. Connect with AHC patients and families from all over the world! Tell your story and connect 
It’s a combined project of Nord and Eurordis.
