Alternating Hemiplegia of Childhood Foundation
-
January Newsletter
$100,000 matching grant announced, Quilt raffle is better than ever, New partners in the Poarch Band of Creek Indians introduced, Social Media fundraising explained, New research published again!, Mourning the passing of an AHC angel, Newsletter help needed,… Read More
-
2020 Quilt Raffle Open
The Raffle will be drawn February 15, 2020 at 7pm during theWarriors for Kathryn event in Connersville, Indiana. Ticket Information:Online Raffle Ticket Sales will close at 1pm Eastern Time on day of drawing.Tickets will be available at the… Read More
-
AAV Project Update
December 6, 2019 – Joint message from Cure AHC, AHC Foundation and Hope for Annabel: We are pleased to share our latest progress on the AAV gene therapy project. Keeping with our space travel analogy, we are excited… Read More
AAV Project
With funds raised from the AHC Foundation, we hope to develop a cure for all of our AHC families suffering from AHC. We believe a path has been identified to a viable permanent treatment: gene therapy. Gene Therapy… Read More
Matching Grant Challenge
The first $100,000 of 2020 will be matched by a generous donor! The Poarch Band of Creek Indians of Alabama have awarded us an opportunity to make a huge impact on the future of our children. Their generosity… Read More
Community
The AHC Foundation is committed to being the foremost source of information and support for the AHC Community. With the various channels we use to connect with our families, and help families connect with each other, the AHCF has… Read More
The Foundation
Our mission is to find the cause(s) of AHC, develop effective treatments and ultimately find a cure, while providing support to the families and children with AHC by funding research to accomplish these goals.
Through research, education and family support, we have
ONE MISSION: END AHC
Secondarily, we strive to promote proper diagnosis, educate health care professionals, the public and related organizations, encourage the worldwide exchange of information and advance the development of an international database of all AHC patients. Learn More
- January Newsletter
- 2020 Quilt Raffle...
- December Newsletter
- AAV Project Update
- Autumn Newsletter
- Research Grant Awarded
- That’s a Wrap!
- 14th Chicago Walk...
- July Newsletter
- Sharo Golf Outing...
- June Newsletter
- 25k Matching Grant...
January Newsletter
$100,000 matching grant announced, Quilt raffle is better than ever, New partners in the Poarch Band of Creek Indians introduced, Social Media fundraising explained, New research published again!, Mourning the passing of an AHC angel, Newsletter help needed,… Read More
2020 Quilt Raffle Open
The Raffle will be drawn February 15, 2020 at 7pm during theWarriors for Kathryn event in Connersville, Indiana. Ticket Information:Online Raffle Ticket Sales will close at 1pm Eastern Time on day of drawing.Tickets will be available at the… Read More
December Newsletter
Season’s greetings from Josh Marszalek, AAV Gene Therapy Project update, Research published, and a strong assessment of our collaboration with other AHC groups in this month’s newsletter from the AHC Foundation. Read. Share. Advocate. PDF version here.
AAV Project Update
December 6, 2019 – Joint message from Cure AHC, AHC Foundation and Hope for Annabel: We are pleased to share our latest progress on the AAV gene therapy project. Keeping with our space travel analogy, we are excited… Read More
Autumn Newsletter
Research Grant awarded, Summer matching grant met, Dr. George summarizes 8th ATP1A3 Symposium, Gene therapy basics, Epilepsy and AHC research published, AHCF advisor publishes paper on ATP1A3, and Family Meeting 2020 information in our newsletter! Please read, share,… Read More
Research Grant Awarded
The AHC Foundation is pleased to announce the funding of important research at Northwestern and Vanderbilt Universities. A continuation of important work supported by the AHCF, Dr. George and Dr. Ess will lead their teams in collaboration toward… Read More
That’s a Wrap!
ROLL CREDITS! You did it again! Thank you to the AHC community for crushing the Summer Sequel 25k Matching Grant from the Wedum Family Foundation! You raised $41,174 to which 25k will be added. A total of $66,174… Read More
14th Chicago Walk Coming up!
Our 14th Annual Chicago Walk is coming up in October! Click here for more information and registration!
July Newsletter
AHCF President says hello, Fundraisers abound in August, Summer Blockbuster Matching grant continues, Japanese research on AHC hearts published, Gene Therapy basics explained, AHC bibliography updated all in this month’s edition of the AHCF newsletter. Read. Share. Advocate…. Read More
Sharo Golf Outing Planned
Golf Outing to Benefit Alternating Hemiplegia of Childhood Foundation Sponsored by Terry and Barbara Sharo for their granddaughter, Kiley Andrasco Kiley is afflicted with a rare neurological disorder called AHC (Alternating Hemiplegia of Childhood). It has affected her… Read More
June Newsletter
AHCF elects new leadership, Lyn Egan says “thank you” but not goodbye, Carol Presunka steps down from the board, AAV Project update, AHCF Family meeting set for L.A., Dr. Anderman passes away, AHCF fundraisers announced, Another matching grant… Read More
25k Matching Grant Sequel
The Blockbuster Summer Sequel is here! We have another opportunity to double our donations this summer! Thanks to the Wedum Family Foundation, we will have all donations from June 1 thru August 31 matched. Up to $25,000! These… Read More
