• July Newsletter

    The Board of Directors has had a strategic planning session, the Foundation has funded three projects, the next Webinar has been scheduled, the foundation developed a Family Grant program, published research is summarized, and the Medical Advisory Board answers… Read More

New Jersey 2018

AHCF Families and Friends – the countdown to the 12th Family Meeting has begun! Mark your calendars now and Join us in New Jersey June 22nd – 24th, 2018 as we come together for the AHCF Family Meeting… Read More

Learn More

Impact Statement 2016

The AHC Foundation has garnered enormous support financially, as well as through the time and talents of volunteers applied toward our mission to support families, educate the community, and advance research.  The AHCF understands that good stewardship of… Read More

Learn More

Fundraising

Volunteers and private donations are the source of all the funds raised for any research into Alternating Hemiplegia of Childhood; from any organization.  The AHCF has had great success supporting individuals and families to raise funds on behalf… Read More

Learn More

The Foundation

Our mission is to find the cause(s) of AHC, develop effective treatments and ultimately find a cure, while providing support to the families and children with AHC by funding research to accomplish these goals.

Through research, education and family support, we have

ONE MISSION: END AHC

Secondarily, we strive to promote proper diagnosis, educate health care professionals, the public and related organizations, encourage the worldwide exchange of information and advance the development of an international database of all AHC patients. Learn More

July Newsletter

The Board of Directors has had a strategic planning session, the Foundation has funded three projects, the next Webinar has been scheduled, the foundation developed a Family Grant program, published research is summarized, and the Medical Advisory Board answers… Read More

Learn More

Father’s Day and Amazon Smile

Father’s Day is Sunday, June 18. Shop at smile.amazon.com/ch/38-3225425 and Amazon will donate to Alternating Hemiplegia of Childhood Foundation

Learn More

May Newsletter

Memorial Day is this weekend, and we have lots for you to read! Five article published, Mouse Model making news, AHCF Medical Advisory Board publishes a paper, AHCF hosted a “Call to Action” webinar regarding the threatened NIH… Read More

Learn More

Inaugural AHCF New England Walk

JOIN US! in New England this May 21st for the first annual walk to benefit AHC communities through the AHC Foundation. A beautiful 1.5 mile walk through Nevers Park in South Winsor Connecticut with Friends, Music, Raffles, Food Trucks… Read More

Learn More

April Newsletter

Honoring Volunteers, Advocating to maintain NIH funding, AHC Families Call to Action!, AHCF Medical Advisory Board continues to answer your questions, an Opinion Statement article published by research team, fundraising through triathlon, 2018 ATP1A3 Symposium announcement, and the… Read More

Learn More

In the News: Emilia interview

On February 15 the New Jersey Fox 29 station published an interview with Emilia Schalick and her family.  A great interview that will certainly result in greater awareness of our rare disease.  Thank you for putting yourselves out there for… Read More

Learn More

Valentine Exchange is Back!

Valentine Exchange! Hi AHC families, It’s time to start thinking about our annual Valentine’s Day card exchange. For those new to the group, the children/adults with AHC send cards to each other. Some make or buy cards to… Read More

Learn More

Spread the Love this Valentine’s Day

Spread the love! As you shop for Valentines, please use this link and do some good at the same time! smile.amazon.com/ch/38-3225425

Learn More

AHC Day Kamin Foundation Donation

Happy International AHC Day! As promised in last week’s announcement, there is more exciting news to share as we kick off 2017. The Jake and Nina Kamin Foundation family of AHC sufferer Asher Cohen, has awarded the AHC… Read More

Learn More

Step Up Campaign is a Success!

Happy New Year to our AHC community, near and far!  2017 is starting off on a high note with wonderful, engaged families, incredible doctors focused on cutting edge research to find a treatment, and of course, generous donors… Read More

Learn More

December 2016 Newsletter

A holiday message from Lynn (our President), annual fundraising campaign has begun, families are making the news, AHC Consortium work is happening in Europe, and research papers are summarized in this month’s newsletter.  Read.Share.Enjoy

Learn More

Impact Statement 2016 Published

We are proud to issue our inaugural impact statement. It is published in our website here.  Read, Share, Enjoy!

Learn More