Alternating Hemiplegia of Childhood Foundation
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AAV Project Update
A Blessing in Disguise –AAV Project Update August 2020 The AAV project continues to move forward and we have both progress—and some unexpected developments to report. A Refresh – What is the AAV Project? The AAV Project originated… Read More
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Call to Action Natural History Database
AHCF currently funds a grant through MGH/Harvard with Dr Kathryn Swoboda. This Natural History Study is critical for future clinical trials and developing treatments for AHC!EVERY AHC FAMILY is asked to join. http://ahckids.org/naturalhistory/
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ER Protocol Published
The AHC Foundation has published an Emergency Room Protocol. The intent of this document is to educate doctors unfamiliar with AHC and with your child’s specific medical needs.Especially in this time of COVID-19 viral infections where your child… Read More
AAV Project
With funds raised from the AHC Foundation, we hope to develop a cure for all of our AHC families suffering from AHC. We believe a path has been identified to a viable permanent treatment: gene therapy. Gene Therapy… Read More
Fundraising
Volunteers and private donations are the source of all the funds raised for any research into Alternating Hemiplegia of Childhood; from any organization. The AHCF has had great success supporting individuals and families to raise funds on behalf… Read More
Community
The AHC Foundation is committed to being the foremost source of information and support for the AHC Community. With the various channels we use to connect with our families, and help families connect with each other, the AHCF has… Read More
The Foundation
Our mission is to find the cause(s) of AHC, develop effective treatments and ultimately find a cure, while providing support to the families and children with AHC by funding research to accomplish these goals.
Through research, education and family support, we have
ONE MISSION: END AHC
Secondarily, we strive to promote proper diagnosis, educate health care professionals, the public and related organizations, encourage the worldwide exchange of information and advance the development of an international database of all AHC patients. Learn More
- AAV Project Update
- Call to Action...
- May Newsletter
- ER Protocol Published
- AHCF Gear is...
- Family Meeting Rescheduled
- January Newsletter
- 2020 Quilt Raffle...
- December Newsletter
- AAV Project Update
- Autumn Newsletter
- Research Grant Awarded
AAV Project Update
A Blessing in Disguise –AAV Project Update August 2020 The AAV project continues to move forward and we have both progress—and some unexpected developments to report. A Refresh – What is the AAV Project? The AAV Project originated… Read More
Call to Action Natural History Database
AHCF currently funds a grant through MGH/Harvard with Dr Kathryn Swoboda. This Natural History Study is critical for future clinical trials and developing treatments for AHC!EVERY AHC FAMILY is asked to join. http://ahckids.org/naturalhistory/
May Newsletter
Our May Newsletter begins with a message from our President, describes a new tool for patients, introduces our latest edition to the board of directors, announces our bibliography update, and shares some of the latest published research in… Read More
ER Protocol Published
The AHC Foundation has published an Emergency Room Protocol. The intent of this document is to educate doctors unfamiliar with AHC and with your child’s specific medical needs.Especially in this time of COVID-19 viral infections where your child… Read More
AHCF Gear is here!
Cabin Fever got you down? Shopping is sure to help!Visit our online store and chase those blues away!Check out the new, modern design created by an AHC sibling. Long and short-sleeved t-shirts, hoodies, polos, and even hats are… Read More
Family Meeting Rescheduled
We are disappointed to announce the rescheduling of our 2020 Family Meeting in Los Angeles. COVID-19 events have cascaded to our community. The health and safety of our community is paramount. We would not encourage travel to our… Read More
January Newsletter
$100,000 matching grant announced, Quilt raffle is better than ever, New partners in the Poarch Band of Creek Indians introduced, Social Media fundraising explained, New research published again!, Mourning the passing of an AHC angel, Newsletter help needed,… Read More
2020 Quilt Raffle Open
The Raffle will be drawn February 15, 2020 at 7pm during theWarriors for Kathryn event in Connersville, Indiana. Ticket Information:Online Raffle Ticket Sales will close at 1pm Eastern Time on day of drawing.Tickets will be available at the… Read More
December Newsletter
Season’s greetings from Josh Marszalek, AAV Gene Therapy Project update, Research published, and a strong assessment of our collaboration with other AHC groups in this month’s newsletter from the AHC Foundation. Read. Share. Advocate. PDF version here.
AAV Project Update
December 6, 2019 – Joint message from Cure AHC, AHC Foundation and Hope for Annabel: We are pleased to share our latest progress on the AAV gene therapy project. Keeping with our space travel analogy, we are excited… Read More
Autumn Newsletter
Research Grant awarded, Summer matching grant met, Dr. George summarizes 8th ATP1A3 Symposium, Gene therapy basics, Epilepsy and AHC research published, AHCF advisor publishes paper on ATP1A3, and Family Meeting 2020 information in our newsletter! Please read, share,… Read More
Research Grant Awarded
The AHC Foundation is pleased to announce the funding of important research at Northwestern and Vanderbilt Universities. A continuation of important work supported by the AHCF, Dr. George and Dr. Ess will lead their teams in collaboration toward… Read More
