Alternating Hemiplegia of Childhood Foundation
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Family Meeting Registration Open
Registration is open for the 2021 family meeting! Join us virtually as we Zoom to END AHC on June 26 and 27. Register and learn more here: http://ahckids.org/zoom2021/#endAHC#zoom#familymeeting2021
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Rare-X Data Collection
The AHC Foundation with Hope for Annabel and CureAHC are collaborating with RARE-X to build a data collection program for AHC families. Click here to learn more about this patient owned data hub that can connect all the… Read More
AAV Project
With funds raised from the AHC Foundation, we hope to develop a cure for all of our AHC families suffering from AHC. We believe a path has been identified to a viable permanent treatment: gene therapy. Gene therapy provides a path to a cure for AHC. A similar approach has already been successful in many diseases.
Rare-X Data Collection
The AHC community is partnering with RARE-X, a 501(c)(3) nonprofit organization, to build a Data Collection Program for AHC families. When you participate in the AHC Data Collection Program, you’ll help accelerate research and the development of new drugs, devices, and other therapies.
Virtual Meeting 2021
AHCF is pleased to present our 12th “Family Meeting”! You are invited to join us on Saturday June 26th and Sunday June 27th as we come together virtually to learn about the latest Research, Living with AHC, Behavior issues, Special needs Financial planning, “Ask the Doctor” and “Experienced Parents” panels!
The Foundation
Our mission is to find the cause(s) of AHC, develop effective treatments and ultimately find a cure, while providing support to the families and children with AHC by funding research to accomplish these goals.Secondarily, we strive to promote proper diagnosis, educate health care professionals, the public and related organizations, encourage the worldwide exchange of information and advance the development of an international database of all AHC patients. Learn MoreThrough research, education and family support, we have
ONE MISSION: END AHC
- Family Meeting Registration...
- Rare-X Data Collection
- 2021 Quilt Raffle...
- Rare will be...
- CRISPR Research Funded
- Medications: Do No...
- Year end message...
- Giving Beyond Tuesday
- Happy Thanksgiving
- Research Funded
Family Meeting Registration Open
Registration is open for the 2021 family meeting! Join us virtually as we Zoom to END AHC on June 26 and 27. Register and learn more here: http://ahckids.org/zoom2021/#endAHC#zoom#familymeeting2021
Rare-X Data Collection
The AHC Foundation with Hope for Annabel and CureAHC are collaborating with RARE-X to build a data collection program for AHC families. Click here to learn more about this patient owned data hub that can connect all the… Read More
2021 Quilt Raffle Open
The 2021 Warriors for Kathryn Quilt Raffle is open! This year’s quilt is a twin of that presented to the Poarch Creek Indians in appreciation of their generous matching grant in 2020. Both quilts created by AHC grandparent… Read More
Rare will be the new king
Rarity in our world is often a very good thing. All of the most valuable things in our world are so because they are rare. The less of most any one thing, the more desired it is, and… Read More
CRISPR Research Funded
The AHC Foundation is delighted to announce a partnership with Dr. David Liu’s laboratory at the Broad Institute and Harvard University to investigate gene editing as a potential therapy for AHC. The work of Dr. Liu and his… Read More
Medications: Do No Harm
The second collaborative webinar is set for January 16th 1pm eastern! “Medication: Do No Harm” will be a panel style discussion of medications applied to AHC. The moderated format of the presentation will present questions submitted by the… Read More
Year end message from AHCF
As I write this greeting, my own daughter is coming out of an AHC episode that has lasted several days. There was only a day-and-a-half between this and the previous multi-day episode. Nearly 12 of the last 14… Read More
Giving Beyond Tuesday
Giving this Tuesday makes an impact on AHC kids and families far beyond one day. Help us by Giving Beyond Tuesday. #AHCkids #AHSTRONG #ENDAHC
Happy Thanksgiving
As the Thanksgiving holiday is ought to do, we find ourselves contemplating what we give thanks for this year. I am only in my second year at the helm of this foundation, and I find myself thankful for… Read More
Research Funded
On behalf of the Alternating Hemiplegia of Childhood Foundation (AHCF) we are pleased to announce an award of $173,419.00 to the Department of Pharmacology, Northwestern University, Feinberg School of Medicine for the project “Exploring Mechanisms and the Therapeutic… Read More
