Alternating Hemiplegia of Childhood FoundationAlternating Hemiplegia of Childhood Foundation

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  • 2023 Family Meeting Registration

    The time is finally here for Family Meeting 2023. REGISTRATION OPENS MONDAY! We are thrilled to see you in person June 23-25, 2023 at the Embassy Suites in sunny Los Angeles Glendale, California. Leading researchers and doctors in… Read More

AAV Project

With funds raised from the AHC Foundation, we hope to develop a cure for all of our AHC families suffering from AHC. We believe a path has been identified to a viable permanent treatment: gene therapy. Gene therapy provides a path to a cure for AHC. A similar approach has already been successful in many diseases.

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Rare-X Data Collection

The AHC community is partnering with RARE-X, a 501(c)(3) nonprofit organization, to build a Data Collection Program for AHC families. When you participate in the AHC Data Collection Program, you’ll help accelerate research and the development of new drugs, devices, and other therapies.

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Family Meeting 2023

Join us in beautiful Los Angeles, Glendale California this summer for the 14th AHCF Family Meeting.  We are looking forward to meeting once again in person! Friday June 23rd, Saturday June 24th, and ½ day Sunday June 25th… Read More

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The Foundation

Our mission is to find the cause(s) of AHC, develop effective treatments and ultimately find a cure, while providing support to the families and children with AHC by funding research to accomplish these goals.

Through research, education and family support, we have

ONE MISSION: END AHC

Secondarily, we strive to promote proper diagnosis, educate health care professionals, the public and related organizations, encourage the worldwide exchange of information and advance the development of an international database of all AHC patients. Learn More
  • 2023 Family Meeting...
  • Race for hope
  • New Race Gear
  • Let’s Party
  • We need you!
  • RACE to END...
  • Research Update
  • Rare-X Data Collection
  • Rare will be...
  • CRISPR Research Funded

2023 Family Meeting Registration

The time is finally here for Family Meeting 2023. REGISTRATION OPENS MONDAY! We are thrilled to see you in person June 23-25, 2023 at the Embassy Suites in sunny Los Angeles Glendale, California. Leading researchers and doctors in… Read More

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Race for hope

There are 6,000+ rare diseases. AHC was first noted in the 1970s; described as an unusual disorder in eight children who demonstrated intermittent episodes of weakness, affecting first one side of the body, then the other, with onset… Read More

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New Race Gear

The Race to End AHC looks different this year, and so does our gear! Visit the store to check out this year’s new t-shirt look and stock up on some classics like bandanas, car magnets, and the fan… Read More

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Let’s Party

The last two years we’ve had incredible race day parties all over the world. We still want to celebrate again together this year, just at the finish line instead! Gather your family and friends to celebrate your accomplishment… Read More

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We need you!

The AHC community has a remarkable network of strong families and friends that work hard to raise money every year for research and family support. The best way to support these AHC families is by encouraging family and… Read More

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RACE to END AHC

Registration is now open for our 3rd Annual Race to End AHC and it’s going to be our most exciting year yet! This year we’re connecting racers better than ever by using a digital race platform, My Virtual… Read More

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Research Update

2021 saw advances in a number of projects sponsored by the AHC organizations.  Here is an update of where we are today in each of them: 1. The AAV Project: AAV-Mediated Gene Therapy   We are continuing to assess… Read More

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Rare-X Data Collection

The AHC Foundation with Hope for Annabel and CureAHC are collaborating with RARE-X to build a data collection program for AHC families. Click here to learn more about this patient owned data hub that can connect all the… Read More

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Rare will be the new king

Rarity in our world is often a very good thing. All of the most valuable things in our world are so because they are rare. The less of most any one thing, the more desired it is, and… Read More

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CRISPR Research Funded

The AHC Foundation is delighted to announce a partnership with Dr. David Liu’s laboratory at the Broad Institute and Harvard University to investigate gene editing as a potential therapy for AHC. The work of Dr. Liu and his… Read More

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Contact Us
Alternating Hemiplegia of Childhood Foundation 2000 Town Center Suite 1900 Southfield, MI 48075
(313) 663-7772
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