Alternating Hemiplegia of Childhood Foundation
-
February Newsletter
Largest fundraising effort ever is gaining momentum, Indiana doubles down on AHC, Valentine Exchange happens, Rare Disease Day Coming, Research published, and AAV project explained in this month’s newsletter. Read. Share. Advocate. http://ahckids.org/wp-content/uploads/2019/02/Newsletter_201902_February.pdf
-
January Newsletter
The AAV Project is in Phase One and fundraising continues, Research Projects were authorized by the board, Webinar hosted and will be published on our YouTUBE channel soon, The AHC Bibliography has been updated through December 2018, the… Read More
AAV Project
With funds raised from the AHC Foundation, we hope to develop a cure for all of our AHC families suffering from AHC. We believe a path has been identified to a viable permanent treatment: gene therapy. Gene Therapy… Read More
Fundraising
Volunteers and private donations are the source of all the funds raised for any research into Alternating Hemiplegia of Childhood; from any organization. The AHCF has had great success supporting individuals and families to raise funds on behalf… Read More
Community
The AHC Foundation is committed to being the foremost source of information and support for the AHC Community. With the various channels we use to connect with our families, and help families connect with each other, the AHCF has… Read More
The Foundation
Our mission is to find the cause(s) of AHC, develop effective treatments and ultimately find a cure, while providing support to the families and children with AHC by funding research to accomplish these goals.
Through research, education and family support, we have
ONE MISSION: END AHC
Secondarily, we strive to promote proper diagnosis, educate health care professionals, the public and related organizations, encourage the worldwide exchange of information and advance the development of an international database of all AHC patients. Learn More
- February Newsletter
- January Newsletter
- 2019 Quilt Raffle...
- December Newsletter
- November Newsletter
- AAV Webinar Posted
- Year End Campaign...
- September Newsletter
- July Newsletter
- June Newsletter
- New York Jets...
- April Newsletter
February Newsletter
Largest fundraising effort ever is gaining momentum, Indiana doubles down on AHC, Valentine Exchange happens, Rare Disease Day Coming, Research published, and AAV project explained in this month’s newsletter. Read. Share. Advocate. http://ahckids.org/wp-content/uploads/2019/02/Newsletter_201902_February.pdf
January Newsletter
The AAV Project is in Phase One and fundraising continues, Research Projects were authorized by the board, Webinar hosted and will be published on our YouTUBE channel soon, The AHC Bibliography has been updated through December 2018, the… Read More
2019 Quilt Raffle Open
The Raffle will be drawn February 2nd, 2019 at 7pm during the Warriors for Kathryn event in Connersville, Indiana. Click here to order tickets! Ticket Information: Online Raffle Ticket Sales will close at 3pm Eastern Time on day of drawing…. Read More
December Newsletter
Gene Therapy project is in fundraising phase and we need help, Dr. George wraps up the 7th Symposium of ATP1A3 in Disease held in October. Read. Share. Enjoy. http://ahckids.org/wp-content/uploads/2018/12/Newsletter_201812_December.pdf
November Newsletter
The fundraiser to end all fundraiser has started, the 7th research symposium for ATP1A3 in Disease happened, and research continues in this edition of the AHCF newsletter. Read. Share. Advocate http://ahckids.org/wp-content/uploads/2018/12/Newsletter_201811_November.pdf
AAV Webinar Posted
The AAV Gene Therapy Webinar has been posted to our site. In case you missed the broadcast this past Thursday, we have posted the webinar for your viewing pleasure. Please view it, and learn about the great potential… Read More
Year End Campaign 2018
AHCF’s Year-End Campaign to Fund Gene Therapy Research Innovative AAV Project Aims to Treat Alternating Hemiplegia of Childhood The AHC Foundation is excited to announce the beginning of our year-end campaign called, Step Up 4 AHC. One focus… Read More
September Newsletter
Message from Lynn, Silver co-authors research article, Research grant funded by AHCF, International research symposium coming to Chicago in October, AHC bibliography updated on website, AHCF has new fundraising platform, 13th annual Chicago Walk happened, and our LARGEST… Read More
July Newsletter
New Jersey Meeting was a success! Sibling session at the meeting had an impact, collaboration in the AHC organization community is coming together, AHC yearbook by the AHC community is coming, Dr. Kearney does grand rounds, FDA approves… Read More
June Newsletter
Join us for the Family Meeting in New Jersey this month! If you are not making it this year, join the live streaming of presentations! NFL Fundraiser going on, New England walk was a success, Dr. Silver speaks… Read More
New York Jets Football Tickets
The AHC Foundation is benefiting from a family’s interest in raising funds in this creative way! Paul Hodes is selling tickets for New York Jets football games. Two games for the price of one! Please see the link… Read More
April Newsletter
The 12th AHCF Family Meeting registration is open and planning has been full throttle, Major AHC Research has been published!, traveling tips, ATP1A2 research published, and AHCF family grants available. Read about it all in our monthly Newsletter. … Read More
