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The path to your child’s AHC diagnosis has surely been full of unknowns.  The life you envisioned has been changed forever. You may be grieving the life you planned and struggle with what happens next.  AHCF Family Support volunteers are here to listen to your experiences and share in the daily trials of this complex and unpredictable neurological disorder.

We have experience and resources to support your child and family. We can help you navigate the medical community and provide guidance so you can strongly advocate for your child. Questions and situations will surely arise, and we are here to help.

Engage with AHCF Community

All of our AHC journeys are unique, but we have much in common. Connecting with our community can be a lifeline on tough days. We are here to encourage you and celebrate the joyful moments in this AHC life!