Welcome clinicians, researchers, teachers, therapists, nurses, social workers, caregivers and interested community members. Here you will find a highly curated site of content and resources specific to the rare neurological disorder of Alternating Hemiplegia of Childhood. The content is organized into seven categories to help provide clarity and connections to this complex disorder.
The seven categories include:
“This small foundation has been one of the most effective of its kind in bringing together families in the U.S and partnering with its sister organizations worldwide to promote research and improved clinical care for children and adults with alternating hemiplegia of childhood (AHC). In December 2010, they won a Pepsi Refresh award, which provided the necessary funding to finally find the gene causing this disorder, after a dedicated effort spanning more than 15 yrs. This organization is one to watch. Big in heart, though small in overall dollars, they are a force to be reckoned with.”
– Great Non-Profits Review by Professional with expertise in this field.