Family Meetings

The AHC Foundation hosts a biennial “family meeting” conference that allows families to meet face-to-face, hear presentations on quality-of-life topics, get research updates from the leading projects in AHC, plus make connections that will last a lifetime.

Lynn Egan states, “Imagine having the opportunity to attend a meeting where you as a parent and your child are not alone. You can discuss, compare, cry, challenge, and vent with each other. Each family has a ‘million dollar baby,’ and with it does not come wealth and notoriety. It comes with day-to-day trials, fears, and sometimes despair.”

It is an incredible opportunity to catch up with old friends and meet new ones, hear from researchers, chat with doctors, and learn from everyone attending the meeting.

The planning committee spends many months working hard to make certain that the meeting is educational and inspirational and meets the needs of our families. Many families have formed connections and friendships that stretch across the country and the world.

Meeting locations are purposely selected from different cities across the United States to make it easier for families to attend from various regions as much as possible.