With funds raised from the AHC Foundation, we hope to develop a cure for all of our AHC families suffering from AHC. We believe a path has been identified to a viable permanent treatment: gene therapy. Gene therapy provides a path to a cure for AHC. A similar approach has already been successful in many diseases.
The AHC community is partnering with RARE-X, a 501(c)(3) nonprofit organization, to build a Data Collection Program for AHC families. When you participate in the AHC Data Collection Program, you’ll help accelerate research and the development of new drugs, devices, and other therapies.
Join us for the 2nd Annual AHC Foundation Race to End AHC. A virtual event to spread awareness for AHC and raise funds for research, education, and community support to fulfill the foundation’s mission: END AHC. Joining the Race to End AHC is easy and free! Pick any activity of your choice, set a goal and complete your activity on October 3rd .