The foundation celebrates Rare Disease Day (February 28), AHC research is making headlines, A NEW fund raising effort is in progress for Jun 6, 2015, and the second installment of an article series from an AHC parent are a few of the items in our February newsletter. Read, Enjoy, Share.
Much to celebrate and learn in our first newsletter of 2015. Success in fundraising, Administration moves, and part one of an article series from an AHC parent are a few of the items the foundation would like to share with all of you. Please read and share the news!
Grant Funding Goal Achieved!
In celebration of International AHC Day, we are pleased to announce that Phase 3 of the Vanderbilt and Northwestern project (Molecular Physiology and Pharmacology of ATP1A3 Mutations in AHC) has been funded! We are forever grateful to all of those that donated to the giving Tuesday campaign, letter writing campaigns, fundraising events, and corporate matching.
We would also like to thank Christophe Simmer, of France, his company, Meetic, and the French AHC Foundation, AFHA, for donating €15,000 to further the research.
Lastly, we would especially like to thank an anonymous donor who donated $140,000 so that the research will continue. This project is crucial to our children having a treatment and would not be possible without the generosity of so many people.
Thank you for your continued support. We look forward to the day when we can announce we finally have a treatment!
One Mission: End AHC!
Wine Women and Shoes to benefit AHCF!
Coming Soon! Wine, Women & Shoes! This Fabulous Fundraiser will be held on June 6, 2015 @ the Menlo Circus Club in Atherton California! http://www.menlocircusclub.com/ Mark your calendars and watch for more information in the coming months!
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