• Fimage-Blog WWS

    Wine Women and Shoes Fundraiser

    Coming Soon! Wine, Women & Shoes!  This Fabulous Fundraiser will be held on June 6, 2015 @ the Menlo Circus Club in Atherton California! Mark your calendars and watch for more information in the coming months! Like us on… Read More

The Foundation

Our mission is to find the cause(s) of AHC, develop effective treatments and ultimately find a cure, while providing support to the families and children with AHC by funding research to accomplish these goals.

Through research, education and family support, we have


Secondarily, we strive to promote proper diagnosis, educate health care professionals, the public and related organizations, encourage the worldwide exchange of information and advance the development of an international database of all AHC patients. Learn More

Fimage-Blog PhysiciansMove

Physicians on the move!

Dr Sandra Reyna has accepted a position at Massachusetts General Hospital at Harvard University. She will be the Assistant in Neuroscience and a Clinical Research Operations Scientist at the Neurological Clinical Research Institute! Dr. Reyna received her MD… Read More

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Mission Video

The foundation has created this video explaining our mission beyond the words we use in our Bylaws, Foundation descriptions, and any other written word.  The spoken word and images from this video bring the richness, and bravery of… Read More

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Fimage-Blog NewletterMarch

March Newsletter

Significant research for AHC is published, AHC Physicians are on the move, The Foundation launched its new website, and the third installment of an article series from an AHC parent are a few of the items in our March newsletter…. Read More

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Fimage-Blog NewletterFeb

February Newsletter

The foundation celebrates Rare Disease Day (February 28), AHC research is making headlines, A NEW fund raising effort is in progress for Jun 6, 2015, and the second installment of an article series from an AHC parent are… Read More

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Fimage-Blog NewletterJan

January Newsletter

Much to celebrate and learn in our first newsletter of 2015. Success in fundraising, Administration moves, and part one of an article series from an AHC parent are a few of the items the foundation would like to… Read More

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Fimage-Blog WebsiteAnnounce

Welcome to our new and improved website!

Through the hard work of volunteers within the foundation, our web presence has been updated to reflect a brighter, cleaner, and more streamlined identity.All of the great information previously hosted on our “blue site” has been transferred and… Read More

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