• May Newsletter

    Memorial Day is this weekend, and we have lots for you to read! Five article published, Mouse Model making news, AHCF Medical Advisory Board publishes a paper, AHCF hosted a “Call to Action” webinar regarding the threatened NIH… Read More

The Foundation

Our mission is to find the cause(s) of AHC, develop effective treatments and ultimately find a cure, while providing support to the families and children with AHC by funding research to accomplish these goals.

Through research, education and family support, we have

ONE MISSION: END AHC

Secondarily, we strive to promote proper diagnosis, educate health care professionals, the public and related organizations, encourage the worldwide exchange of information and advance the development of an international database of all AHC patients. Learn More

May Newsletter

Memorial Day is this weekend, and we have lots for you to read! Five article published, Mouse Model making news, AHCF Medical Advisory Board publishes a paper, AHCF hosted a “Call to Action” webinar regarding the threatened NIH… Read More

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Inaugural AHCF New England Walk

JOIN US! in New England this May 21st for the first annual walk to benefit AHC communities through the AHC Foundation. A beautiful 1.5 mile walk through Nevers Park in South Winsor Connecticut with Friends, Music, Raffles, Food Trucks… Read More

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April Newsletter

Honoring Volunteers, Advocating to maintain NIH funding, AHC Families Call to Action!, AHCF Medical Advisory Board continues to answer your questions, an Opinion Statement article published by research team, fundraising through triathlon, 2018 ATP1A3 Symposium announcement, and the… Read More

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In the News: Emilia interview

On February 15 the New Jersey Fox 29 station published an interview with Emilia Schalick and her family.  A great interview that will certainly result in greater awareness of our rare disease.  Thank you for putting yourselves out there for… Read More

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Valentine Exchange is Back!

Valentine Exchange! Hi AHC families, It’s time to start thinking about our annual Valentine’s Day card exchange. For those new to the group, the children/adults with AHC send cards to each other. Some make or buy cards to… Read More

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Spread the Love this Valentine’s Day

Spread the love! As you shop for Valentines, please use this link and do some good at the same time! smile.amazon.com/ch/38-3225425

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AHC Day Kamin Foundation Donation

Happy International AHC Day! As promised in last week’s announcement, there is more exciting news to share as we kick off 2017. The Jake and Nina Kamin Foundation family of AHC sufferer Asher Cohen, has awarded the AHC… Read More

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Step Up Campaign is a Success!

Happy New Year to our AHC community, near and far!  2017 is starting off on a high note with wonderful, engaged families, incredible doctors focused on cutting edge research to find a treatment, and of course, generous donors… Read More

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December 2016 Newsletter

A holiday message from Lynn (our President), annual fundraising campaign has begun, families are making the news, AHC Consortium work is happening in Europe, and research papers are summarized in this month’s newsletter.  Read.Share.Enjoy

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Impact Statement 2016 Published

We are proud to issue our inaugural impact statement. It is published in our website here.  Read, Share, Enjoy!

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Mission Video

The foundation has created this video explaining our mission beyond the words we use in our Bylaws, Foundation descriptions, and any other written word.  The spoken word and images from this video bring the richness, and bravery of… Read More

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