• Fimage-Blog Genotype

    Genotype/Phenotype article from Swoboda and team

    Congratulations and thank you to Dr Louis Viollet, Dr Kathryn Swoboda, Dr Matt Sweney, Sr Sandra Reyna, Tara Newcomb, the rest of the team at the University of Utah and all of the physicians who have contributed in… Read More

  • Fimage-Blog WWS

    Wine Women and Shoes Fundraiser

    Coming Soon! Wine, Women & Shoes!  This Fabulous Fundraiser will be held on June 6, 2015 @ the Menlo Circus Club in Atherton California! Mark your calendars and watch for more information in the coming months! Like us on… Read More

The Foundation

Our mission is to find the cause(s) of AHC, develop effective treatments and ultimately find a cure, while providing support to the families and children with AHC by funding research to accomplish these goals.

Through research, education and family support, we have

ONE MISSION: END AHC

Secondarily, we strive to promote proper diagnosis, educate health care professionals, the public and related organizations, encourage the worldwide exchange of information and advance the development of an international database of all AHC patients. Learn More

Fimage-Blog Genotype

Genotype/Phenotype article from Swoboda and team

Congratulations and thank you to Dr Louis Viollet, Dr Kathryn Swoboda, Dr Matt Sweney, Sr Sandra Reyna, Tara Newcomb, the rest of the team at the University of Utah and all of the physicians who have contributed in… Read More

Learn More
Fimage-Blog GolfForeaCure

Golf Fore a Cure 2015

Help raise money for AHC research by joining the Golf Fore a Cure 2015 Golf Outing in Winchester, Illinois. Saturday June 13 at Plum Creek Golf Course.  Click here for more information.

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Fimage-Blog ActionAlert

Stand up for Rare Disease Patients

ACTION ALERT! Stand up for Rare Disease Patients TODAY Congress is currently debating the 21st Century Cures Initiative, legislation that could dramatically improve the drug development process for rare disease treatments. We are hopeful that HR 971, the… Read More

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Fimage-Blog Caregivers

Caregivers

When Kathleen was little, I didn’t give much thought to having a caregiver.  Family helped whenever we needed someone to watch Kathleen.  We were also fortunate to have neighborhood babysitter right across the street and as soon as… Read More

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Fimage-Blog NewletterApr

April Newsletter

French clinical trial for triheptanoin oil, U.S. Dept. of Education resources discussed, and Researchers are getting the word out on AHC in our April newsletter. Read, Enjoy, Share.

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Fimage-Blog PhysiciansMove

Physicians on the move!

Dr Sandra Reyna has accepted a position at Massachusetts General Hospital at Harvard University. She will be the Assistant in Neuroscience and a Clinical Research Operations Scientist at the Neurological Clinical Research Institute! Dr. Reyna received her MD… Read More

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