Find AHCF in the news, press releases, newsletters, and media kits.


    See how it all started and where we are going.


    Check out our yearly educational events around the country.


    Learn how you can make a difference for AHC families.


    Latest studies, grants, and the medical teams racing for a cure.


    Find help and hope living with Alternating Hemiplegia of Childhood.

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Foundation Updates

Latest news from AHCF

Please enjoy the latest newsletter from AHCF August Newsletter 2014 (more…)

July Family Newsletter


FM 2014 Hands n BraceletsAs I reflect on the success of the family meeting, I am proud of how this meeting was truly amazing! I love reconnecting with families, meeting new families and am always humbled by your presence. The family meetings leave me feeling energized and always strengthen my commitment to the AHC Community. (more…)

AHCF is Blogging!

blog3Welcome to our new Blog. Lynn Egan will be blogging about things that affect AHC families and would love to  hear your comments and ideas! The more dialog the better!!  Check the blog often and join the conversation!     http://ahckids.org/welcome-to-ahc-365/



Family Update Newsletter

One of my favorite things to do for the foundation is to meet with AHC families at the AHCF Family Meeting. It is an incredible opportunity to catch up with old friends and meet new ones, hear from researchers, chat with doctors, and learn from everyone attending the meeting. Read more in our latest newsletter

Family Update:newsletter


Shop for AHC!

shop_for_a_cause_logo SHOP for a CAUSE Card! 

Calling ALL AHCF Families & Friends Who Live Near a Macy’s Store 

 WE NEED YOUR HELP! Macy’s has created a wonderful fundraiser to help the AHCF raise money!


BeneFEST to benefit AHCF!

Palmerino posterThank you Paula Couture -Palmerino and family! We received over $1500 from Benefest and everyone had a great time! (more…)

Renegades for Lisa Marie and AHC!

Lisafirstpitch4Thank you to everyone who supported the Hodes’ Renegades fundraisers this year! Take a peak at Lisa throwing out the first pitch on AHC Awareness night! Lisa video (more…)

3rd Annual Sharo Golf Outing


Over $18,000 was raised at the 3rd annual Sharo Golf outing to benefit AHCF and in honor of granddaughter Kiley Andrasco held August 1st at the Deer Creek Golf Course in University Park Ill. Well Done and Thank you!



2nd Annual “One in a Million” Golf Scramble

Rory:2nd Annual One In a Million Golf Scramble“One In a Million” Golf Scramble” Thank you Greenwood family and friends who raised over $4000 at the golf outing this year. A great time was had by all. See you next year!! (more…)