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Foundation Updates

Grant Funding Goal Achieved!

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In celebration of International AHC Day, we are pleased to announce that Phase 3 of the Vanderbilt and Northwestern project (Molecular Physiology and Pharmacology of ATP1A3 Mutations in AHC) has been funded! We are forever grateful to all of those that donated to the giving Tuesday campaign, letter writing campaigns, fundraising events, and corporate matching.

We would also like to thank Christophe Simmer, of France, his company, Meetic, and the French AHC Foundation, AFHA, for donating €15,000 to further the research.

Lastly, we would especially like to thank an anonymous donor who donated $140,000 so that the research will continue. This project is crucial to our children having a treatment and would not be possible without the generosity of so many people.

Thank you for your continued support. We look forward to the day when we can announce we finally have a treatment!

 Learn More about the grant here.

One Mission: End AHC!

AHC International Day

webJanuary 18 has been recognized as AHC day around the world.  It marks the anniversary of the impact of mutations at the ATP1A3 gene and their significance to the cause of Alternating Hemiplegia of Childhood.  Since the discovery of this gene and its role in AHC an exponential growth in publications, and research effort has occurred.  The entire AHC community is working harder than ever, and with more excitement than ever, toward the same goal: to END AHC.

Holiday Greeting: AHC President celebrates with you

Life with AHC can be an emotional roller coaster for many reasons. We are all at different points in our lives with our children affected by AHC.

Some parents are dealing with a recent diagnosis, school and education , teenagers, behaviors or considering assisted living accommodations.

Sadly, some have even been affected by the death of a child. No matter, where we are in dealing with the disease, we have families to raise, lives to live and the challenges of coping day to day.

The AHC community is bound together by AHC.

Together, we are waiting for a treatment that will stop the episodes.

Together, we hope for a cure that will allow our children to live a good life.

Together, we all have one mission: End AHC.

Let’s do it together!

I wish each of you peace, joy and the hope of the Holiday Season!

Lynn Egan

AHCF President


Holiday Newsletter

Dear AHCF Families and Friends,  Please enjoy the final newsletter of 2014. 2014 December newsletter  There are great things on the horizon for the AHC community and 2015 is shaping up to be a special year! We are looking forward to working with you to make it happen! May all the families have a healthy, happy Holiday!


Wine Women and Shoes to benefit AHCF!

WWS_Logo-01Coming Soon! Wine, Women & Shoes!  This Fabulous Fundraiser will be held on June 6, 2015 @ the Menlo Circus Club in Atherton California! http://www.menlocircusclub.com/  Mark your calendars and watch for more information in the coming months!

Like us on Facebook https://www.facebook.com/ahcfWWS?ref=br_tf


Superbowl Mania is here!

fm-logo-redDo you love Football and someone with AHC? Do you want to help fund research? Than join in on the fun of AHCF’s Football Mania Superbowl Fundraiser!