Find AHCF in the news, press releases, newsletters, and media kits.


    See how it all started and where we are going.


    Check out our yearly educational events around the country.


    Learn how you can make a difference for AHC families.


    Latest studies, grants, and the medical teams racing for a cure.


    Find help and hope living with Alternating Hemiplegia of Childhood.

<< Previous Next >>

Foundation Updates

Shrub Oak family seeks funds for cure for daughter’s rare disease



Local news article from the Hodes family about Lisa. Great job spreading awareness about AHC and AHCF!



Gene Andrasco named AHCF VP

geneWe are very pleased to announce that Gene Andrasco has been elected to assume the role of Vice President of AHCF. Gene has taken a very active roll with the Foundation since his daughter Kiley was diagnosed with AHC.   (more…)

Tax Strategies for parents with Special Needs Kids!

Did you know that with the new Health Care Law there are some significant tax implications for special needs families?
Did you know if you come to the AHCF Family Meeting you can deduct your admission and transportation costs?  (more…)

Renee Hodes Joins AHCF Board

renee and daughters


Please join me in welcoming our newest AHCF Board member Renee Hodes. Renee is mom to Marissa 24, David 16 and Lisa 13 who has AHC.

Renee has worked tirelessly through many fundraising campaigns and frequently calls the Foundation with useful ideas that will improve our service to the AHC families. She is currently on the Family Meeting committee. Always willing to share information and lend encouragement to any family she is 100% invested in finding a treatment and a cure for AHC while helping support the families along the way. You can reach Renee at hodesr@yahoo.com Welcome Renee!!


Texas Walk/Run – April 19th, 2014

Luke LopezRegistration is open for the 5k run/walk being held in Edinburg Texas in honor of Luke Lopez and all the kids with AHC! http://ahckids.org/hope-for-luke-and-kids-walkrun-to-cure-ahc/

Texas AHC families and friends come on out and support the Lopez family, have fun and raise $$ for AHCF too!

Detroit Red Wings Game benefits AHC!

Red Wing groupThank you to all those hockey fans that had a great time at the Red Wings game while supporting AHCF!  Thanks for spreading awareness and raising money for research too. See you all next year!! (more…)

Shoot for the Cure Basketball Tourney for AHC!

March MayhempicUpdate for the March Mayhem Shoot for the Cure Basketball tournament – the Ryan’s and their friends and families raised over $12,000  for AHCF! Read Cindy Ryan’s recap of the day!


Wilkinson Family raises $1000 in two fundraisers

wilkinsonThank you to Faye Wilkinson and family and friends for your spaghetti dinner and the High School Interact Club Bracelet sale which netted over $1000 for AHCF in honor of Zach and all the kids with AHC! (more…)

Fire & Ice Chili Cook Off Feb 15!

fire and iceCome support JoBoy’s Brew Pub and AHC Kids Foundation in honor of  Chef Dwayne Spencer’s daughter Koryn Spencer. The cook off will take place at Warwick High School in Lititz, Pennsylvania on February 15 @ 11:00 AM.  Great Food, lots of fun and a good cause! (more…)