Partnering with Families, Leading Research
AHC Family Support
- Basics
- Newly Diagnosed
- Crisis Help
- Experienced Parent Volunteers
- Largest Global Family Directory
Research
- Discovered Gene Causing AHC
- Partners – Harvard, Broad Institute, Northwestern
- Pepsi Challenge Funding Recipient
- First AHC Registry
What We Fund
- Research
- International Studies
- Family Grants & Education
- Family Meetings
- ATP1A3 Symposiums
Financial Stewardship
- 501c3 accredited foundation
- Silver Seal of Transparency
- IRS 990s available
How We’re Making a Difference
Donating to the AHC Foundation allows us to fund the foremost research to end AHC, providing hope to AHC families around the world.
Recent News & Updates
AHC Update at Lurie Childen’s Hospital
Our Medical Advisory Board members, Dr. Sho Yano and Dr. Ken Silver, did a joint presentation on May 4, 2024, on the latest information on AHC related to ATP1A3 at Lurie Children’s Hospital for the Neurology department. They did a great job introducing the complexities of ATP1A3 and educating the staff about AHC. One topic of note – the time it takes to diagnose an AHC patient now is measured in weeks vs. the years it took when Dr. Silver started 20 years ago.
Upcoming Events
Family Meeting 2025
Exciting news coming soon! We have big plans for our 2025 family meeting. It’s a great time to meet a committed, wonderful group of people determined to find a cure. You’ll also experience in person an amazing and supportive community and learn about the latest research. Follow us on Facebook for the latest news.